I have all the symptoms of CCI but test comes back inconclusive

[KaitIsTired]

Fainting
Neck and shoulder pain
Photophobia
Dysphagia
Shortness of breath

• palpitations
• shortness of breath
• nausea
• fatigue
• Lhermitte's sign
• cognitive and memory decline
• clumsiness and motor delay
• fainting
• weakness of the limbs
• 
  I got so tired I copy and pasted the rest from Wikipedia. I’m so done with this illness.

Update: radiologists state there might be something wrong with my neck. I’m so relieved.

 

[YippeeKi YOW !!]

I got so tired I copy and pasted the rest from Wikipedia. I’m so done with this illness.

Unfortunately, this disease is like wrestling with an 800 lb gorilla ..... it's not done when you're tired, it's done when the gorilla's tired...

Hang in ... keep reading, keep hypothesizing, keep researching. It'll get better ....

 

[valentinelynx]

Can you say what test came back inconclusive? I believe it's possible to have CCI without overtly positive measurements on MRI. This is why Dr. Bolognese uses traction testing. If a patient has significant improvement with traction despite non-pathological or borderline measurements, it can mean you have "cranial settling", in which the skull slides down on the upper cervical spine. I'm not well-versed in this, but I think I read about it in @JenB 's writings.

Best of luck in your seeking answers!

 

[JenB]

You definitely cannot trust radiology reports as they often don’t look for CCI/AAI, don’t take measurements, or if they do, don’t do them properly. You need to consult with an expert neurosurgeon and get, ideally, two opinions. And yes, a cervical MRI can be normal. There are sooooo many different tests.

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