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How to get medical help for MCAS in the UK?

ruben

Senior Member
Messages
286
Hello all. If anyone is interested here are my recent ventures. I have recently had an MRI scan in London at the Medserena clinic. My images were then forwarded to Dr. Gilete in Barcelona. This was followed by an online consultation with Dr. Gilete last week. I do have a bit of a neck problem so I decided to have the scan. Dr. Gilete did say my images weren't entirely how they should be but said he wasn't entirely convinced this was the cause of my symptoms. He is compiling a report for my GP saying I should have this mast cell thing investigated. Does anyone know if this is an easy thing in UK. Is this an NHS thing or yet another private medical issue. All info much appreciated.
 

Celandine

Senior Member
Messages
201
I think it's really down to luck here. My daughter's NHS POTS consultant is very up on MCAS and knows about prescribing meds for it. He doesn't do any private appointments and his POTS/syncope clinic is only for people in the greater Plymouth area (around 30 mile radius around Plymouth) That's what I mean by luck. We happen to live in the right place and found the right doctor. Whereabouts in the UK are you?
 

Celandine

Senior Member
Messages
201
From my experience, GPs would have next to no knowledge of MCAS. Mastocytosis maybe, but not MCAS.
 

Celandine

Senior Member
Messages
201

livinglighter

Senior Member
Messages
379
Hello all. If anyone is interested here are my recent ventures. I have recently had an MRI scan in London at the Medserena clinic. My images were then forwarded to Dr. Gilete in Barcelona. This was followed by an online consultation with Dr. Gilete last week. I do have a bit of a neck problem so I decided to have the scan. Dr. Gilete did say my images weren't entirely how they should be but said he wasn't entirely convinced this was the cause of my symptoms. He is compiling a report for my GP saying I should have this mast cell thing investigated. Does anyone know if this is an easy thing in UK. Is this an NHS thing or yet another private medical issue. All info much appreciated.

I'm not sure if you managed to get this sorted but google UK neurologists and POTS or autonomics and see who comes up and research them. They usually express the areas of neurology they specialise in and have interests in.
 
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livinglighter

Senior Member
Messages
379
You may be able to see someone on the NHS about it. Some people prefer to have a private consultation with the said consultant that also has an NHS clinic. Then based on their recommendations or agreement be referred to their NHS clinic by their GP. A private consultation allows them the time to consider complex cases that the 10/15 minute NHS appointments don’t allow for.
 
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hb8847

Senior Member
Messages
432
Location
United Kingdom
"Mast Cell Action" is an UK based organisation/charity, they gave me a list of both NHS and private UK doctors that specialise in MCAS, it might be worth reaching out to them.