5vforest
Senior Member
- Messages
- 273
I posted this earlier in a personal thread but I figure that I would move it out here to a new one.
I just got a PCR positive for EBV, which I was totally not expecting. Not that my symptoms don't necessarily match it, just that I was no more acutely sick on that day than any other day.
I don't think these levels are "high", but given the sensitivity/specificity of PCR I'm inclined to believe them and try some more treatment.
I've already taken Valcyte for 3 months with no effect. Not exactly sure what I would try now.
Some folks have suggested more Valcyte -- I am considering it.
I already started Transfer Factor PlasMyc and Reishi capsules. Why not, right?
I have a doctor who would consider trying IVIG to help support my immune system. Apparently they would ideally try it with 50% of their CFS patients if insurance covered it. I think I could get it... but isn't this kinda crazy?
I am open to any advice. This is the only real "lead" I have at the moment; everything else that doctors have suggested to me I feel is either a) too conservative and just treating symptoms, or b) super wacky.
Thanks all
I just got a PCR positive for EBV, which I was totally not expecting. Not that my symptoms don't necessarily match it, just that I was no more acutely sick on that day than any other day.
I don't think these levels are "high", but given the sensitivity/specificity of PCR I'm inclined to believe them and try some more treatment.
I've already taken Valcyte for 3 months with no effect. Not exactly sure what I would try now.
Some folks have suggested more Valcyte -- I am considering it.
I already started Transfer Factor PlasMyc and Reishi capsules. Why not, right?
I have a doctor who would consider trying IVIG to help support my immune system. Apparently they would ideally try it with 50% of their CFS patients if insurance covered it. I think I could get it... but isn't this kinda crazy?
I am open to any advice. This is the only real "lead" I have at the moment; everything else that doctors have suggested to me I feel is either a) too conservative and just treating symptoms, or b) super wacky.
Thanks all