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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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How many of you CFS/ME patients have GHD?

Tired of being sick

Tired of being sick

Senior Member
Messages
565
Location
Western PA USA
or have never had your human growth hormone levels checked?

If it is a high %age I will then believe that this is the root of most or all of symptoms..

HGH is to humans as oil is to the combustion engine..

I strongly suspect my levels to be low to absent

I will have my results for HGH levels by august 7th 2014
 
Gingergrrl

Gingergrrl

Senior Member
Messages
16,171
That is interesting you bring this up and my endo tested my HGH twice (by blood test) and both times it was low. He said there is a very elaborate, time consuming test which confirms if it is really low and this test is required by insurance companies (in the U.S.) before HGH shots can be given. I never pursued this test as he found I had thyroid issues and we decided to treat that first.

I do not remember what the elaborate test is called but has anyone here done it and in regards to CFS diagnosis, is it worth the effort?
 
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