took about 15 monthes for me, 1st stage = confusion 2nd stage = depression / go a bit insane 3rd stage= try to work around it and keep living normally ( bad advice of doctors puts people on this path, they think they can cure it by determination / exercise etc ) 4th stage = suddenly become a lot worst, lose touch with past life, feel some regrets but also cursed / hopeless 5th stage = somehow come back from that situation to semi normality. After 5th stage 'adjustment' is achieved.
For me I would say the adjustment is a bit like going from the mindset of a 25 year old to a 40 or 50 year old,
but somehow you have to keep hold of your personality and interests at the same time. If your brain doesn't permafog etc / have constant light sensitivity / migraine problems etc like some people then its easier because you can remodel yourself as an academic type of person ( though we suffer in terms of memory reliability / brain speed ).
If you catch the correct diagnosis early and learn what to do you might be able to avoid the change which causes people not to be able to walk properly anymore, to start with I could still walk miles but now I couldn't even make it 1km, one time I had no choice but to walk 500m and it took about 20 minutes. Some people seem to just spontaneously get worse though or start off severe right from the beginning ( e.g. jenn brea ), so its kind of random,
some think there may be different 'versions' of the disease. So in that sense it can be highly unpredictable, which is one of the harder things to deal with psychologically.