• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Hives (urticaria) and ME/CSF?

SWAlexander

Senior Member
Messages
1,942
Sorry to ask another question.
Are Hives (urticaria), MTHFR rs1801131 and ME/CSF related?
It looks like my doctors recognize urticaria as a part of MTHFR. Having urticaria since Dec 2020, at the same time thrombosis and jaundice on top of ME/CSF, doctors are as helpless as I am. The only medication that keeps me upright is Prednison and antihistamines.
 
Last edited:

junkcrap50

Senior Member
Messages
1,333
Could be Mast Cell Activation Syndrome (MCAS) which is common in ME/CFS.

I don't know about the thrombosis and jaundice. Is this covid related? Did you have covid?
 

SWAlexander

Senior Member
Messages
1,942
Could be Mast Cell Activation Syndrome (MCAS) which is common in ME/CFS.

I don't know about the thrombosis and jaundice. Is this covid related? Did you have covid?

"Is this covid related?"
Could be. It is also an MTHFR

"Did you have covid?"
According to the test - NO.
But I remember that some tests are not accurate.

Still no answer about (MCAS).