Boule de feu
Senior Member
- Messages
- 1,118
- Location
- Ottawa, Canada
What I find difficult with CFS is that we end up with very weird symptoms. This is one of them.
Three weeks ago, I ended up sitting to long on the floor in my daughter's room. When I got up, my foot was numb - same sensation when you freeze your feet while skating. However, it never left. Now, I have three numb toes, the top of my foot feels weird (dentist feeling) and I can touch the nerve (calf) that triggers painful electric shocks in my toes.
My doctor mentioned a tarsal tunnel syndrome which I believe I have. He asked me to wait a few months to see if it would go away.
When someone mentioned HNPP, I realized that I had several incidents before:
I would wake up in the middle of the night with one (or two) numb arms. The tingling was so severe that I had to lift my arm with the other arm to move it - Each time, I would have to get up and shake it really hard to make the tingling go away. Sometimes, it would work. It was extremely painful. The first time it happened I thought I was having a heart attack.
At some point, the left hand side of my face was also numb. It stayed like that for at least a year. My doctor thought I had a tumor on the optic nerve.
Now, I have pain in my wrists. I get cramps whenever I try to do something (like peeling potatoes).
I have difficulty walking. I was diagnosed with peripheral neuropathy a while back.
My dad is also dealing with paralysis in three of his fingers. We don't know why.
Has anyone been dealing with this?
______________________________________________________________
What is hereditary neuropathy with liability to pressure palsies?
Hereditary neuropathy with liability to pressure palsies is a disorder that affects peripheral nerves. These nerves connect the brain and spinal cord to muscles as well as sensory cells that detect touch, pain, and temperature. In people with this disorder, the peripheral nerves are unusually sensitive to pressure.
Hereditary neuropathy with liability to pressure palsies causes recurrent episodes of numbness, tingling, and/or loss of muscle function (palsy). An episode can last from several minutes to several months, but recovery is usually complete. Repeated incidents, however, can cause permanent muscle weakness or loss of sensation. This disorder is also associated with pain in the limbs, especially the hands.
A pressure palsy episode results from problems in a single nerve, but any peripheral nerve can be affected. Episodes often recur, but not always at the same site. The most common problem sites involve nerves in wrists, elbows, and knees. Fingers, shoulders, hands, feet, and the scalp can also be affected. Many people with this disorder experience carpal tunnel syndrome when a nerve in the wrist (the median nerve) is involved. Carpal tunnel syndrome is characterized by numbness, tingling, and weakness in the hand and fingers. An episode in the hand may affect fine motor activities such as writing, opening jars, and fastening buttons. An episode in the leg can make walking, climbing stairs, or driving difficult or impossible.
Symptoms usually begin during adolescence or early adulthood but may develop anytime from childhood to late adulthood. Symptoms vary in severity; many people never realize they have the disorder, while some people experience prolonged disability. Hereditary neuropathy with liability to pressure palsies does not affect life expectancy.
What other names do people use for hereditary neuropathy with liability to pressure palsies?
compression neuropathy
entrapment neuropathy
familial pressure sensitive neuropathy
hereditary motor and sensory neuropathy
hereditary pressure sensitive neuropathy
HNPP
inherited tendency to pressure palsies
tomaculous neuropathy
More on that:
http://wiki.medpedia.com/Hereditary_neuropathy_with_liability_to_pressure_palsies
Three weeks ago, I ended up sitting to long on the floor in my daughter's room. When I got up, my foot was numb - same sensation when you freeze your feet while skating. However, it never left. Now, I have three numb toes, the top of my foot feels weird (dentist feeling) and I can touch the nerve (calf) that triggers painful electric shocks in my toes.
My doctor mentioned a tarsal tunnel syndrome which I believe I have. He asked me to wait a few months to see if it would go away.
When someone mentioned HNPP, I realized that I had several incidents before:
I would wake up in the middle of the night with one (or two) numb arms. The tingling was so severe that I had to lift my arm with the other arm to move it - Each time, I would have to get up and shake it really hard to make the tingling go away. Sometimes, it would work. It was extremely painful. The first time it happened I thought I was having a heart attack.
At some point, the left hand side of my face was also numb. It stayed like that for at least a year. My doctor thought I had a tumor on the optic nerve.
Now, I have pain in my wrists. I get cramps whenever I try to do something (like peeling potatoes).
I have difficulty walking. I was diagnosed with peripheral neuropathy a while back.
My dad is also dealing with paralysis in three of his fingers. We don't know why.
Has anyone been dealing with this?
______________________________________________________________
What is hereditary neuropathy with liability to pressure palsies?
Hereditary neuropathy with liability to pressure palsies is a disorder that affects peripheral nerves. These nerves connect the brain and spinal cord to muscles as well as sensory cells that detect touch, pain, and temperature. In people with this disorder, the peripheral nerves are unusually sensitive to pressure.
Hereditary neuropathy with liability to pressure palsies causes recurrent episodes of numbness, tingling, and/or loss of muscle function (palsy). An episode can last from several minutes to several months, but recovery is usually complete. Repeated incidents, however, can cause permanent muscle weakness or loss of sensation. This disorder is also associated with pain in the limbs, especially the hands.
A pressure palsy episode results from problems in a single nerve, but any peripheral nerve can be affected. Episodes often recur, but not always at the same site. The most common problem sites involve nerves in wrists, elbows, and knees. Fingers, shoulders, hands, feet, and the scalp can also be affected. Many people with this disorder experience carpal tunnel syndrome when a nerve in the wrist (the median nerve) is involved. Carpal tunnel syndrome is characterized by numbness, tingling, and weakness in the hand and fingers. An episode in the hand may affect fine motor activities such as writing, opening jars, and fastening buttons. An episode in the leg can make walking, climbing stairs, or driving difficult or impossible.
Symptoms usually begin during adolescence or early adulthood but may develop anytime from childhood to late adulthood. Symptoms vary in severity; many people never realize they have the disorder, while some people experience prolonged disability. Hereditary neuropathy with liability to pressure palsies does not affect life expectancy.
What other names do people use for hereditary neuropathy with liability to pressure palsies?
compression neuropathy
entrapment neuropathy
familial pressure sensitive neuropathy
hereditary motor and sensory neuropathy
hereditary pressure sensitive neuropathy
HNPP
inherited tendency to pressure palsies
tomaculous neuropathy
More on that:
http://wiki.medpedia.com/Hereditary_neuropathy_with_liability_to_pressure_palsies
