I am in a bad place rigjt now. If i rest with my eyes closed(most of my life now) it aggravates my seizure activity. If i stimualte it gives me pem and activates my acitivity too or weakens me making ut worse. So i dont seem to have a way to br anymore. I also grey out when tired lately. I am worried and not exactly sure what to do.
I have hppd which is considered a seizure disorder, and tinnitus. Also just general worse s activity after my last crash.
I was afraid something like this might happen.
Last time i had bad hppd i played viseo games for 6 months till it calmed down, cant do that now.
Feels im in a nuerological crisis a bit. Also this isnt the meds, im pretty good at watching meds. Maybe ivermectin but before my crash it was helping me a ton and i did notnhave these issuesZ. I was on it for 2 months at the time. Bssically before my crash best place i had been in in a year since the hell of cfs bega .
I know its not good to think about fikuture but i need to address this issue, i dont thinknits good to let it fester. I cant imagine doing this long term/letting it worsen. Plus i think s activity builds. And it wouldnt he thenfirst time my me has given me a bad issue that wont resolve unless i find some med to stop it.
I could try kepra but often times that makes hppd worse.
Feel like if i mess this up im pretty much toast. But i feel like i need to do something this is really not good my health is just awful atm.
I have hppd which is considered a seizure disorder, and tinnitus. Also just general worse s activity after my last crash.
I was afraid something like this might happen.
Last time i had bad hppd i played viseo games for 6 months till it calmed down, cant do that now.
Feels im in a nuerological crisis a bit. Also this isnt the meds, im pretty good at watching meds. Maybe ivermectin but before my crash it was helping me a ton and i did notnhave these issuesZ. I was on it for 2 months at the time. Bssically before my crash best place i had been in in a year since the hell of cfs bega .
I know its not good to think about fikuture but i need to address this issue, i dont thinknits good to let it fester. I cant imagine doing this long term/letting it worsen. Plus i think s activity builds. And it wouldnt he thenfirst time my me has given me a bad issue that wont resolve unless i find some med to stop it.
I could try kepra but often times that makes hppd worse.
Feel like if i mess this up im pretty much toast. But i feel like i need to do something this is really not good my health is just awful atm.
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