Have you checked for Empty Sella ?

[SK2018]

since a lot of evidence before states ME ,CFS has issues with the HPA axis which includes the pituitary gland I wonder if anyone has had an MRI and seen that their pituitary gland is damaged ..? either enlarged ,flattened like a pancake or have " an empty Sella" ? It is sometimes missed or brushed off as an incidental finding,if you have a side view screenshot of an MRI though I would be able to recognise it (jpgs only) however just google "Empty Sella pituitary" and you'll see what a squished pituitary looks like.For the record mine is squished.Might he worth checking out.l ,ESS Empty Sella Sybdrome can cause debilitating fatigue ,brain fog , and HPA dysfunction as well as hormonal issues.


Just a thought
Cheers

 

[Hip]

Empty sella syndrome is an interesting phenomenon, which might have significance for ME/CFS, but to my knowledge, there haven't been any studies to check if there is a higher prevalence in ME/CFS patients.

There are a few previous threads on this subject, such as this one.

Empty sella syndrome is pretty common in the general population, with studies finding a prevalence of 8 to 35%. And it is 5 times more common in females compared to males. Ref: 1

It would be interesting to see if empty sella syndrome were more common in ME/CFS patients than it is in the general population; if it were more common, that would suggest empty sella might play a causal role in ME/CFS.

 

[pamojja]

,if you have a side view screenshot of an MRI though I would be able to recognise it however just google "Empty Sella pituitary" and you'll see what a squished pituitary looks like.

Couldn't spot it, couldn't even find an old infarction I was diagnosed in the left cerebellum on my MRI - nor do I remember when it could have happened. If you like you can take a look at my MRI uploaded (divided the different resolution between 4 PDFs).

Old infarction in the left cerebellum hemisphere mediobasal belonging to the current region of the cerebellar artery posterior inferior (6/40-44) from ap up to 3 cm, tranversal up to 1 <cm and craniokaudal scarcely 2cm size in each largest diameter. Otherwise, the structure and signal behavior of the brain are regular. Regular diffusion ratios. Symmetrical, medium, normal wide supra- and infratentorial ventricular system. The external CSF spaces are normal. Virchow-Rubin's rooms in the typical places. Discretely diverging axes of the bulbi oculorum with closed eyelids. Otherwise the orbits and their contents are regular. Individual delicate mucosal swellings in several ethmoidal cells on the left more pronounced than on the right, and extremely faint on the left forehead. The remaining nasal sinuses and temporal bones on both sides are properly signal-less.

Meanwhile someone on an other forum pointed out that the old infarction is seen on image 7 in 640_b.

 

[ScottTriGuy]

I have an empty sella - "totally effaced" I believe was the term in the report.

Iirc, Jen Brea tweeted she also had an empty sella.