If you put Eculizumab into the search box on this site a couple of things come up @Bread
https://forums.phoenixrising.me/thr...fiber-neuropathy-question.62252/#post-2227451Eculizumab (Soliris) is the fourth most expensive drug on the market in the US, costing $400,000 to $700,000 per year, it has only four FDA approved indications, all of them quite rare, and it is associated with some severe adverse events/risks. So I doubt it has been tried on anybody with ME/CFS and small fiber neuropathy.
At a list price of approximately $500,000 per patient per year, eculizumab, which is also approved to treat atypical hemolytic uremic syndrome and generalized myasthenia gravis, is one of the most expensive therapies in the world. It sells for $6543 per vial; the wholesale acquisition cost of ravulizumab is slightly lower at $6404 per vial, the company said in a recent filing, according to Reuters. Reuters also noted that the newer drug has an FDA black box warning for the risk of life-threatening meningococcal infections and sepsis, the same as eculizumab.
You dont need to delete it, just edit it.I wish I could have deleted the last post because he did not say he had myasthenia gravis. Which is the problem with all these covid long haulers because they don’t tell you what they had before covid.