- Messages
- 8
I was just diagnosed with severe growth hormone deficiency and am wondering if anyone else has it. I'm feeling overwhelmed and lost.
Has anyone else been diagnosed with adult-onset growth hormone deficiency?
- Thread starter 20somethingspoonie
- Start date
Have you seen an endocrinologist about this matter? When/if you do, please take someone else along as they can make notes while you get a bit lost in what is being explained to you.
What are your symptoms? I hope they're not contributing to your exhaustion. Feel better....Yours, Lenora.
What are your symptoms? I hope they're not contributing to your exhaustion. Feel better....Yours, Lenora.
Last edited by a moderator:
Hip
Senior Member
- Messages
- 17,657
Do you know that human growth hormone (HGH) deficiency can produce near identical symptoms to ME/CFS? So if you have severe HGH deficiency, all your symptom may be due to that, and that means you may not have ME/CFS at all.
That would be is very good news, because HGH deficiency symptoms clear up in a matter of days of starting growth hormone injections. HGH deficiency is a very treatable condition. Whereas if you have ME/CFS, it's very hard to find any treatments which improve this. So it would be much better to have HGH deficiency than ME/CFS.
Has you doctor arranged an appointment with an endocrinologist, because HGH deficiency is usually treated with HGH injections? I believe these injections you would give yourself at home.
We had one person on this forum who thought she had ME/CFS for 10 years, due to a misdiagnosis. After 10 years, she discovered she in fact had HGH deficiency, not ME/CFS at all.
Once she started GH injections, she was back to near normal within days, and back to complete normal in a month. See her thread here.
The symptoms of adult HGH deficiency are listed here.
kewia
Senior Member
- Messages
- 233
Did you get treated in the meantime for it?
Do you also have muscle weakness?
heapsreal
iherb 10% discount code OPA989,
- Messages
- 10,008
- Location
- australia (brisbane)
GH deficiency could come about because many of us don't reach stage 3 and 4 deep sleep where most gh is secreted.
- Messages
- 8
(I forgot about this thread — I'm sorry!) Long story short: We thought I may have secondary adrenal insufficiency, so I saw a private endocrinologist in the UK who ordered a glucagon stimulation test. It showed I do not have secondary adrenal insufficiency, but I do have several adult onset growth hormone deficiency.
- Messages
- 8
I have yet to access treatment. In order to access growth hormone injections, I need to have a second stimulation test, but it, along with the injections themselves, are very expensive and I can't afford them right now.
Well, about 35 yrs. ago I was diagnosed with a pituitary tumor. No blood tests were ever done (perhaps they weren't available?), but I did take the drug, bromocriptine, for many years. It disappeared and, as far as I know, I've not had a problem.
Since nothing can be done about it, I'm really backing away from collecting diagnoses, at least at this age. When you're younger I say "do it." It could certainly explain a lot as time passes. Yours, Lenora
Since nothing can be done about it, I'm really backing away from collecting diagnoses, at least at this age. When you're younger I say "do it." It could certainly explain a lot as time passes. Yours, Lenora
Last edited by a moderator:
kewia
Senior Member
- Messages
- 233
Just out of interest, there is more than just one GHD?