It'd be great, the problem is I would imagine after all this time they've probably tried every approach they can think of, so other than the firefighting approach, of pointing out the problems with the "research" then, given it looks like they don't have the resources to shove posters etc up everywhere, like was done for MS 30 odd years ago, what else can they do?
Seriously
I'm not affiliated with, or even a contributor to any of the ME charities, I don't even know much about them apart from that AfME is on the other side (as a charity), but there is a man here, trying to help, regardless of results he probably doesn't deserve to be lambasted.
Seriously
I'm not affiliated with, or even a contributor to any of the ME charities, I don't even know much about them apart from that AfME is on the other side (as a charity), but there is a man here, trying to help, regardless of results he probably doesn't deserve to be lambasted.
I don't think all avenues of improving advocacy in the UK have been explored/exploited though. There is room for thinking about what can be done more effectively still. IMO.