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Good POTS articles to show reluctant Doctor

Messages
37
Can anyone recommend some good articles to print out & give a friend of mine whose doctor thinks that if you are not passing out all the time, then you can't have POTS. Preferably some that have suggestions about possible treatments.

:thumbsup:
 

Sallysblooms

P.O.T.S. now SO MUCH BETTER!
Messages
1,768
Location
Southern USA
Try this. I am on this forum. Lots of information on this page. Good information about different forms of Dysautonomia. I have added a couple of links for you.

Passing out, or Syncope is not needed with POTS. That is totally diff. About 30% of POTS patients have Syncope. Low blood pressure is separate.

You rarely find good info about supplements for POTS/CFS. Integrative docs can help.

http://www.dinet.org/

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1501099/

http://www.chronic-illness.org/blog/postural-tachycardia-syndrome-pots
 

ahimsa

ahimsa_pdx on twitter
Messages
1,921
The Johns Hopkins handout on Orthostatic Intolerance (both POTS and NMH) is available in a PDF here - http://www.cfids.org/webinar/cfsinfo2010.pdf . It includes treatment suggestions.

And here's the web page from the "Research 1st" web site (from the CFIDS Association) - http://www.research1st.com/2011/06/19/the-outs-and-ins-of-oi/

One extract from this web page:

There are many types of OI. When you round up experts who study the autonomic nervous system (as we did at one of our research symposia in the year 2000), they have trouble agreeing on the names and definitions for the various types of OI. (Does that sound familiar?)