ChookityPop
Senior Member
- Messages
- 563
My energy levels are mostly pretty good. At least when my circadian rhythm is balanced and I pace myself. Intermittent fasting and eating the right foods helps.
I am bed bound almost all day staring at my TV with my mac hooked up on it. Main problems is blood pooling/dysautonomia and muscle PEM. Blood pooling is dysautonomia right? And I get muscle PEM vey easy. My muscles starts to burn if I type to much for example.
My problem is blood pooling when I stand up and walk and my muscles burns out very quickly. I can drive my car, though sometimes its harder than others. If I look down too long on my phone in the wrong posision I burn out my neck muscles and it can take days for the muscles to recover, this strainy lactic acid feeling. This can happen from reaching for a glass of water in the wrong position too. Even typing on my phone or computer.
I played with a cat that was in this cat tree with my arms elevated for like 1-2 minutes. Not constant but in intervals and suddenly my arms were BURNT out. This hurts and I got super tired and fell asleep for 2 hours. My body just shut down, this doesnt happen often but a few maybe 1 time every other month
I cant stand right up and down for long as its the worst for my legs and calfs. Same with walking though its slightly better even though I cant walk for long distances. I can go into the supermarket and buy like 1kg worth of foods and hurry ut in my car.
This may be tbi, but something I find interesting is I can have sex almost like I did pre getting sick. In terms of intensity and duration. From maybe 15-30 plus minutes etc. As long as I dont burn my muscles my body recovers from the sex very good.
Its like I dont use the muscles in those ways that makes me get muscle PEM. This isnt the case all the time ofc. I have to stop occasionally. And sometimes I actually get tired quicker, but it comes down to the position. Like I cant stand in a push up position forever obviously.
And lastly I want to point out that I can feel how great sex is for my health. Its the only activity I can do like semi normal and its amazing to get blood circulation, endorphins, etc. Anyone else ?
I can add that TRT has been great for me. Not huge benefits but I notice I recover faster.
This isnt the same for all ME patients right? Some are very fatigued and sleep a lot? Zero energy?
My issues seems to be autonomic dysfunction and muscle PEM. Is muscle PEM a result of this? Or something else?
Would appreciate some thoughts or theories on this.
I am bed bound almost all day staring at my TV with my mac hooked up on it. Main problems is blood pooling/dysautonomia and muscle PEM. Blood pooling is dysautonomia right? And I get muscle PEM vey easy. My muscles starts to burn if I type to much for example.
My problem is blood pooling when I stand up and walk and my muscles burns out very quickly. I can drive my car, though sometimes its harder than others. If I look down too long on my phone in the wrong posision I burn out my neck muscles and it can take days for the muscles to recover, this strainy lactic acid feeling. This can happen from reaching for a glass of water in the wrong position too. Even typing on my phone or computer.
I played with a cat that was in this cat tree with my arms elevated for like 1-2 minutes. Not constant but in intervals and suddenly my arms were BURNT out. This hurts and I got super tired and fell asleep for 2 hours. My body just shut down, this doesnt happen often but a few maybe 1 time every other month
I cant stand right up and down for long as its the worst for my legs and calfs. Same with walking though its slightly better even though I cant walk for long distances. I can go into the supermarket and buy like 1kg worth of foods and hurry ut in my car.
This may be tbi, but something I find interesting is I can have sex almost like I did pre getting sick. In terms of intensity and duration. From maybe 15-30 plus minutes etc. As long as I dont burn my muscles my body recovers from the sex very good.
Its like I dont use the muscles in those ways that makes me get muscle PEM. This isnt the case all the time ofc. I have to stop occasionally. And sometimes I actually get tired quicker, but it comes down to the position. Like I cant stand in a push up position forever obviously.
And lastly I want to point out that I can feel how great sex is for my health. Its the only activity I can do like semi normal and its amazing to get blood circulation, endorphins, etc. Anyone else ?
I can add that TRT has been great for me. Not huge benefits but I notice I recover faster.
This isnt the same for all ME patients right? Some are very fatigued and sleep a lot? Zero energy?
My issues seems to be autonomic dysfunction and muscle PEM. Is muscle PEM a result of this? Or something else?
Would appreciate some thoughts or theories on this.
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