Good doctor in the US? (SE preferred)

Messages
14
Likes
15
I'm looking for a doctor and / or somewhere I can get testing done that's relevant to ME specifically and / or CFS generally.

While my location is in the Mid-South / SE US, travel elsewhere may be possible.

My first priority is nailing down what specifically is going on. Is it ME? The more we know about what's going on, the better we can figure out what might help.

Any ideas or advice?
 
Messages
14
Likes
24
Location
Virginia, USA
@WantToGetWell

I have ideas, but not advice! I live in the DC area, where we have nothing. I have been "eyeing" the following two places, but don't have the energy to travel South to them. Perhaps you would like to check them out if you are able.
1)
The Institute for Neuro-Immune Medicine at Nova Southeastern University
Located in Miami, FL and Ft. Lauderdale, FL
Dr. Allison Bested, Dr. Nancy Klimas, and Dr. Irma Rey

2)
The Hunter-Hopkins Center
Located in Charlotte, NC
Dr. Vincent Hillman and Dr. Charles Lapp

If money and energy weren't issues, I myself would give the Florida one a shot, as they are plugged into academic research.
 
Messages
14
Likes
15
@WantToGetWell

I have ideas, but not advice! I live in the DC area, where we have nothing. I have been "eyeing" the following two places, but don't have the energy to travel South to them. Perhaps you would like to check them out if you are able.
1)
The Institute for Neuro-Immune Medicine at Nova Southeastern University
Located in Miami, FL and Ft. Lauderdale, FL
Dr. Allison Bested, Dr. Nancy Klimas, and Dr. Irma Rey

2)
The Hunter-Hopkins Center
Located in Charlotte, NC
Dr. Vincent Hillman and Dr. Charles Lapp

If money and energy weren't issues, I myself would give the Florida one a shot, as they are plugged into academic research.
@FiliaLumen, can you give me some insight into how much they cost, especially Nova? Is there any other helpful information you can share?
 

ebethc

Senior Member
Messages
1,901
Likes
1,823
Has anyone on this board been to Lucinda Bateman? (Bateman Horne Center) I've always been surprised that there aren't more comments on her and also on Dr Nancy Klimas (I'm talking about first person accounts... ppl who've been patients of these docs)
 
Messages
40
Likes
145
With Hunter-Hopkins, I reached out last July and got an appointment for this May. With that delay, I'm not surprised that they aren't taking new patients.
I'm seeing Dr. Susan Levine in New York and am traveling from North Carolina to NY next week for various diagnostics. She was great in running a full battery of lab tests.
 

Stretched

Senior Member
Messages
663
Likes
800
Location
U.S. South
With Hunter-Hopkins, I reached out last July and got an appointment for this May. With that delay, I'm not surprised that they aren't taking new patients.
I'm seeing Dr. Susan Levine in New York and am traveling from North Carolina to NY next week for various diagnostics. She was great in running a full battery of lab tests.
IMO, you’re lucky to have found Dr. Levine. I’ve followed most of the top docs as a very long term PWC, who has followed the research, trials and publications since the early 1990’s. Hunter-Hopkins has been controversial, with less than optimal first hand reports. FWIW, Dr. Bateman is also a top clinical physician, in addition to conducting numerous trials... . I wish there were some good or even knowledgeable ME docs in Atlanta, GA.
If anyone knows of or has had good experience in that regard please post.