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The last month of my life has been the worst in a long time. I know I did things incorrectly and that's on me, but I wish I never started methylation. I have wasted so much time and money and feel absolutely terrible.
Due to recurring histamine intolerance and anemia, I decided to try methylation. I did genetic testing and found MTHFR and MTRR mutations. I hadn't read anything yet on here about it and started to take 680 mcg of folate as well as 500 mcg of methylcobalamin. I took this successfully for about 2 months. Obviously, knowing what I know now this has likely induced a donut hole deficiency or paradoxical folate deficiency.
I started to get shallow breathing every time I took folate or b12. It progressed to sleep apnea. I had to stop all supplements. However, the shortness of breath would randomly occur out of nowhere, now accompanied by a racing heart, tightness in my chest, extreme weakness like paralysis, and tingling. These episodes got worse over the next two months. I went to the ER twice. A third time yesterday. The second time, they told me my potassium was low. They gave me some supplements and I did feel better for the next two days only. The episodes resumed. Potassium does help with the shortness of breath most of the time. However, there have been episodes where it doesn't help me at all and I have to sit and breath through all the symptoms. It's absolutely terrifying. The third time I went to the hospital they said I had a low fever and slightly elevated RBC and hematocrit. Yet, couldn't determine the cause.
In the past week, new symptoms have occurred such as feeling very inflamed throughout my body. A constant dull headache. My calves feel swollen (but look normal). My arms feel heavy. I have severe palpitations. Horrible horrible spells of weakness and feeling like I will pass out. I just want all of this to stop but I do not want to touch b12 or folate again in order to get out of this hole because then I'd have to continue to take them and I'm not in a place mentally to continue methylation and handle the roadblocks along the way. Maybe I can try again in a few years the right way but right now I just want all of this to stop. I know there is nothing else going on health wise because I had cancer in the past and am monitored very closely by doctors throughout the year. I do not have heart issues or anything of the sort.
I wish I could go back in time before all of this. If anyone has suggestions as far as this folate deficiency I've induced in myself, please please advise. I need my quality of life back even though it wasn't that great before anyway it was definitely better than this.
Due to recurring histamine intolerance and anemia, I decided to try methylation. I did genetic testing and found MTHFR and MTRR mutations. I hadn't read anything yet on here about it and started to take 680 mcg of folate as well as 500 mcg of methylcobalamin. I took this successfully for about 2 months. Obviously, knowing what I know now this has likely induced a donut hole deficiency or paradoxical folate deficiency.
I started to get shallow breathing every time I took folate or b12. It progressed to sleep apnea. I had to stop all supplements. However, the shortness of breath would randomly occur out of nowhere, now accompanied by a racing heart, tightness in my chest, extreme weakness like paralysis, and tingling. These episodes got worse over the next two months. I went to the ER twice. A third time yesterday. The second time, they told me my potassium was low. They gave me some supplements and I did feel better for the next two days only. The episodes resumed. Potassium does help with the shortness of breath most of the time. However, there have been episodes where it doesn't help me at all and I have to sit and breath through all the symptoms. It's absolutely terrifying. The third time I went to the hospital they said I had a low fever and slightly elevated RBC and hematocrit. Yet, couldn't determine the cause.
In the past week, new symptoms have occurred such as feeling very inflamed throughout my body. A constant dull headache. My calves feel swollen (but look normal). My arms feel heavy. I have severe palpitations. Horrible horrible spells of weakness and feeling like I will pass out. I just want all of this to stop but I do not want to touch b12 or folate again in order to get out of this hole because then I'd have to continue to take them and I'm not in a place mentally to continue methylation and handle the roadblocks along the way. Maybe I can try again in a few years the right way but right now I just want all of this to stop. I know there is nothing else going on health wise because I had cancer in the past and am monitored very closely by doctors throughout the year. I do not have heart issues or anything of the sort.
I wish I could go back in time before all of this. If anyone has suggestions as far as this folate deficiency I've induced in myself, please please advise. I need my quality of life back even though it wasn't that great before anyway it was definitely better than this.
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