Sorry, sounds like you are stuck between a rock and a hard place. I see these issues a lot on the hypermobility/EDS forums, some severe patients respond quite well to Octreotide, others have to go down the route of feeding lines etc.@ryan31337 Yes unfortunately I have officially dx mild gastroparesis, protein and fat make it far worse but I get less heart pounding, carbs are the exact opposite, catch-22.
Interesting about the sleepiness after meals. When I was first ill I would get this and fall asleep after every meal but since getting worse this has completely gone away. Maybe that is a sign that some kind of dumping is going on.
The somnolence became the biggest issue for me. I'd have an hour or 2 of being able to just about function after eating (if you ignore the sweats, pounding heart, bloating & diarrhoea), but then the late dumping phase would hit and I'd get blurry eyesight, complete loss of concentration and no ability to tolerate noise/stimuli. I'd go lay down for 30 minutes, nap/pass out and wake up feeling OK. Until an endo realised it was reactive hypoglycemia I just thought my 'ME' had gotten way worse. They even had me in for a multiple sleep latency test to investigate narcolepsy because I was out like a light 3x times a day....no one else had even thought to consider my diet (beyond the useless fasting glucose test).
This is a really fantastic presentation on the subject if you haven't seen it before: