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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Movies and Documentaries about ME

Pyrrhus

Pyrrhus

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An Existence Project said:
An Existence Project is a short stop-motion animation about what it is like to live with mild or moderate Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS).

It was created by Inga Topolnicki using handmade watercolour paper props. She decided to make this film so there would be something accessible people could show their friends and family which would help them communicate the complex aspects of living with this chronic illness.

Illness forces you to rest in place so much that you begin to notice the little details of objects around you. The intricate aesthetic of this animation emerged from this increased awareness and an appreciation of the things around Inga’s home that became her whole world.

Chronic illness isolates us physically from others but also from society by a lack of understanding. Inga wants this film to help connect people again.
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Rufous McKinney

Rufous McKinney

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13,363
Pyrrhus said:
Now available on YouTube:
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I just watched Spoon Theory.

that is so Outstanding.

While every one of us has a version of the story, that one is powerful and uses imagery more than lectures and commentary.

I can really get behind sharing this.

It conveys so much in non verbal terms. What film is really for. For a few moments, maybe somebody could imagine, and could understand. Like- her own father.

:hug::hug::hug:
 
Rufous McKinney

Rufous McKinney

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Pyrrhus said:
You can read a review with the filmmaker Josh Pickup:
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it seems this Spoon concept was developed associated with Executive function and Lupus.

interesting.

I worked for 20 years, my supervisor had Lupus. THe main thing she could not do was- go out in the sun.

Other than that, I'm collapsed and she is doing everything all the time and never stops.
 
Pyrrhus

Pyrrhus

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I forgot the Japanese documentary about life with ME in Japan:

Hope to Our Hands: The Hidden Story of ME/CFS in Japan
https://forums.phoenixrising.me/threads/japan-me-cfs-in-japan.82385/#post-2313038

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Pyrrhus

Pyrrhus

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And here is an important 2-part documentary from Norway entitled "The ME Scandal":

babeng said:
A new Norwegian two part documentary named "The ME scandal" has been released. It has English subtitles so everyone can see! It exposes the fraudulent science behind CBT/GET, Lightning Process, the PACE trial and the Wessely school, as well as lobbying and networking to the very top of political power, illegal discrimination of ME patients, biomedical findings, corrupt media, and much, much more.
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https://forums.phoenixrising.me/threads/new-documentary-the-me-scandal.83446/
 
Pyrrhus

Pyrrhus

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Pyrrhus said:
You can read a review with the filmmaker Josh Pickup:
https://twitter.com/i/web/status/1367483944137072640
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Josh Pickup is now fundraising for a new film called "Gates"!
Josh Pickup said:
Like everyone who has suffered or is currently suffering with an invisible disability, I have and still am facing huge barriers in the industry as a disabled filmmaker. There is a section near the top of our [Twitter] page that details just how appalling the support is for disabled workers in the industry.

In recent interviews about my first film 'This is ME' I talked about my dream of making a feature film with ME at it’s centre. Something to truly represent our experience. Although Gates is not about ME, it's success will dictate how and when I can make my dream film.
[...]
‘Gates’ is an EXTREMELY special project to me and a lot of others so we are asking other wonderful humans to help us get it to the place it deserves! We have worked tirelessly on this campaign to get our followers excited and now we are delighted to launch the page and give everyone a closer insight into the film. Please take a look here - https://kickstarter.com/projects/joshpickup/gates-0………

If you ARE interested in becoming part of the project, there are amazing rewards to be had at every pledge tier as well as a host of exciting content about the team and production process that we haven’t released before. If you have any questions please don’t hesitate to ask and I thank you for reading this message. I hope you have a pleasant rest of your day :)

Regards, Josh Pickup
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Pyrrhus

Pyrrhus

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German Documentary: Living with ME/CFS (2021)
https://forums.phoenixrising.me/threads/new-me-cfs-documentary.84744/

Hajnalka said:
The German/French TV channel ARTE premieres an ME/CFS documentary tonight at 10 pm. Subtitles are also available in English, Italian and Spanish.

It can already be viewed online: https://www.arte.tv/en/videos/096283-000-A/living-with-chronic-fatigue-syndrome/

With three pwME, one pwLC and researchers Scheibenbogen, Behrends, Prusty, Fluge and Mella.
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Pyrrhus

Pyrrhus

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Here's an upcoming documentary focused on Postural Orthostatic Tachycardia Syndrome (POTS), from filmmakers who view POTS as a condition, not just a symptom:

BEHIND THE VISIBLE (2021)
https://www.behindthevisiblefilm.com/

People are going through things that we can't see. People can appear perfectly healthy, when in reality their body is struggling to perform basic functions. Husband and wife team, Ashley and Cort Rippentrop, created the documentary Behind the Visible to show what it’s like to live with an invisible illness, highlighting POTS (Postural Orthostatic Tachycardia Syndrome) in particular. POTS is a form of dysautonomia, meaning the autonomic nervous system does not work as it should. Your autonomic nervous system controls things we don't think about like breathing, heart rate, kidney function, digestion, blood pressure, and many other things. When this system doesn't function properly, it creates systemic problems and debilitating symptoms throughout the body.

Behind the Visible takes the viewer on a journey to get to know some people who live with POTS to show how it affects their lives. Not only do these people deal with the countless, very physical symptoms of their illness each day, but they are also up against friends, family, and even other doctors who think their sickness is all in their head. Also in the film are renowned specialists in the field and other POTS patients and their caregivers. By making an invisible illness more "visible," we hope our film helps to change the stigma surrounding chronic, invisible illnesses and helps the world understand what these people go through. What you see simply with the eyes is not always the full picture. Most importantly, Behind the Visible gives a voice to the unbelieved, dismissed and chronically ill. This film is sure to touch the hearts of many within the chronic and invisible illness community as well as their families.
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Pyrrhus

Pyrrhus

Senior Member
Messages
4,172
Location
U.S., Earth
Pyrrhus said:
Here's an upcoming documentary focused on Postural Orthostatic Tachycardia Syndrome (POTS), from filmmakers who view POTS as a condition, not just a symptom:

BEHIND THE VISIBLE (2021)
https://www.behindthevisiblefilm.com/
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This documentary is now available for viewing at https://bit.ly/btvfilm !
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My name is Ashley and I am the Director/Producer of Behind the Visible, a documentary about living with POTS. I am a POTS patient myself and I share my story as well as others to show what it is like to live with invisible illness. We officially released our film yesterday on Vimeo and would love to continue to get the word out about it.

As you know, many long covid patients are now developing me/cfs, POTS, or some sort of related disorder. There is such a huge overlap among these communities and regardless of what invisible illness you’re dealing with, we all have experienced what it’s like to be doubted and dismissed and remain undiagnosed for years.

I would love to continue to reach these communities to not only educate and raise awareness but more importantly, to help more people know they are not alone. The film also serves as an educational watch for providers to see how these patients typically present.

To watch our film, go to https://bit.ly/btvfilm to watch our film.
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L

lenora

Senior Member
Messages
4,926
Pyrrhus said:
There are some brave filmmakers trying to make fictional films having to do with ME.


Here is one example of a film called "Wild Horses":
https://forums.phoenixrising.me/thr...is-short-listed-for-prize-at-cannes-fi.50720/

And here is one unfinished film called "Black Box: Listen":
https://twitter.com/i/web/status/1248214043321565184


And here is one finished short film called "This is ME":
https://purefilms.tv/this-is-me.html
https://twitter.com/i/web/status/1347257961803079683
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Hi Pyrrhus....Not an indication at all of those shows here in the U.S. Perhaps it will take time for them to arrive....but thought you'd like to know that you aren't being ignored. Do you have any idea how many films having to do with Wild Horses are out here? Yours, Lenora.
 
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