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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Mouse girl

Senior Member
Messages
579
Unfortunately, the full-length documentary "I Remember Me", about the famous 1984 Incline Village outbreak, appears to no longer be available, but a trailer is available here:
https://mecfssa.org.au/resources/i-remember-m-e

Related discussions:
https://forums.phoenixrising.me/threads/i-remember-me-thoughts-and-curiosities.46054/
https://forums.phoenixrising.me/threads/i-remember-me-stephen-paganetti.3829/

You can buy a VHS tape or DVD on amazon. I have both. I bought the tape oh, decades ago now, i guess or close to that and then got the DVD. It was just so validating as this was before i knew anyone else with the illness except a few strangers i met at some in person support groups the few times i could drive that far to make it. I heard that in the end, she found out she had Lyme and was doing much better, she was able to work again but hadn't seen much of her that i could find after she produced her second film.
 

Pyrrhus

Senior Member
Messages
4,172
Location
U.S., Earth
The Most Underfunded Disease at the NIH
by Winston Blick of "ME/CFS Quotes"

If you compare funding and disease burden data across all diseases at the NIH for which this data is available, one disease stands out. It's ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), a condition that afflicts 1–2.5 million Americans. Those numbers may rise drastically as a result of long COVID, which in many cases closely resembles ME/CFS.

For more resources, doctors and patients can refer to the U.S. ME/CFS Clinician Coalition: https://mecfscliniciancoalition.org
[...]
Special thanks to Andrew Vickers, who composed the soundtrack for this video. Arthur Mirin, Mary Dimmock, and Leonard Jason conducted the research into ME/CFS funding vs. disease burden that is referred to throughout this video. Read their latest research update: https://pubmed.ncbi.nlm.nih.gov/32568148
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For more informative content, follow ME/CFS Quotes (@mecfsquotes) on Twitter, Instagram, and Facebook.
 

lenora

Senior Member
Messages
4,913
Hi @Mouse girl....how are you? I thought perhaps you had left the Forum, but I'm glad to see that you're still here. Here's hoping that life is going better for you this year. Yours, Lenora.
 

Osaca

Senior Member
Messages
344
I could be wrong, but I believe Unrest has been free to watch on YouTube for roughly a month and should stay that way, at least in the mean time.