wonderoushope
Senior Member
- Messages
- 247
Hi there,
I have been doing pretty well health wise for the last 6-8 months. I am not perfect, but I manage to work 2 days a week in a stressful job now and don't crash unless something triggers me to crash.
I haven't been diagnosed officially, because to be honest I have been able to keep things under control myself through diet and pacing and it's more effort than it's worth to try and find decent specialists in Australia (Melbourne). I've tried and most so far have no clue. I found a wonderful dietician specialing in CFS and she has helped me immensely to get back on track. My GP has always suspected I have either fibromyalgia or CFS, but I would say I am pretty good these days and not completely in remission because I do have slight relapses but 80% better than I was, so I haven't really pursued an official diagnosis.
Anyway, although I have been in somewhat of a remission, I have noticed of late getting back pain again and with that major fatigue. Luckily it doesn't last long, usually now just a day and then wont reappear for at least a few weeks even months. But yesterday I was absolutely wiped out and had an achy back and just could not get out of bed all day as I felt so tired and couldn't find any energy to do anything, but then the next day the back pain is gone. Yesterday was particularly bad and I think it was because it was the second day trying Seroquel for insomnia. I only had 1/2 the dosage (12.5 mg) and I think that just tipped me over the edge, it was too much for my body to cope with. The flare-up with back pain increasing probably does coincide with my diet being a little bit more lax of late, but I think yesteredays flare-up was a lot worse because of the added Seroquel. I noticed on a strict elimination diet for 6 months I didn't really have any back pain issues (but I did have other aches and pains in other parts of my body). I do have worn disc (known from a MRI). Today back pain was gone and energy was back to being really quite good.
I guess my question is this something others find happens to them, that they ache for one day and then it disappears for 2 weeks or even a few months and then flares up for a day or so? I don't have what would be typical fibromyalgia pain, in the sense that I am not aching day in and day out, but all the pressure points hurt a lot when touched, but I actually don't feel the pain unless touched. At different times (mainly it moves from weeks to week) my pain transfers to different parts of my body, but usually not all at the same time. So some months it will be my calves, other months it will be my lower back, then my upper back, then costochondritis will flare-up, at other times my jaw will hurt, then my arms will play up etc but not all at the same time. In the past I suffered a lot from migraines, but that has died down considerably, I think to lifestyle and diet. I am wondering if I am more at the early stages of fibro and it's being kept under control with diet and lifestyle?
I have been doing pretty well health wise for the last 6-8 months. I am not perfect, but I manage to work 2 days a week in a stressful job now and don't crash unless something triggers me to crash.
I haven't been diagnosed officially, because to be honest I have been able to keep things under control myself through diet and pacing and it's more effort than it's worth to try and find decent specialists in Australia (Melbourne). I've tried and most so far have no clue. I found a wonderful dietician specialing in CFS and she has helped me immensely to get back on track. My GP has always suspected I have either fibromyalgia or CFS, but I would say I am pretty good these days and not completely in remission because I do have slight relapses but 80% better than I was, so I haven't really pursued an official diagnosis.
Anyway, although I have been in somewhat of a remission, I have noticed of late getting back pain again and with that major fatigue. Luckily it doesn't last long, usually now just a day and then wont reappear for at least a few weeks even months. But yesterday I was absolutely wiped out and had an achy back and just could not get out of bed all day as I felt so tired and couldn't find any energy to do anything, but then the next day the back pain is gone. Yesterday was particularly bad and I think it was because it was the second day trying Seroquel for insomnia. I only had 1/2 the dosage (12.5 mg) and I think that just tipped me over the edge, it was too much for my body to cope with. The flare-up with back pain increasing probably does coincide with my diet being a little bit more lax of late, but I think yesteredays flare-up was a lot worse because of the added Seroquel. I noticed on a strict elimination diet for 6 months I didn't really have any back pain issues (but I did have other aches and pains in other parts of my body). I do have worn disc (known from a MRI). Today back pain was gone and energy was back to being really quite good.
I guess my question is this something others find happens to them, that they ache for one day and then it disappears for 2 weeks or even a few months and then flares up for a day or so? I don't have what would be typical fibromyalgia pain, in the sense that I am not aching day in and day out, but all the pressure points hurt a lot when touched, but I actually don't feel the pain unless touched. At different times (mainly it moves from weeks to week) my pain transfers to different parts of my body, but usually not all at the same time. So some months it will be my calves, other months it will be my lower back, then my upper back, then costochondritis will flare-up, at other times my jaw will hurt, then my arms will play up etc but not all at the same time. In the past I suffered a lot from migraines, but that has died down considerably, I think to lifestyle and diet. I am wondering if I am more at the early stages of fibro and it's being kept under control with diet and lifestyle?