Apologies if this has already appeared on PR, but saw this on twitter recently. Because we have no "biomarker" for the likes of ME/CFS, IBS and Fibromyalgia, there are people out there who maybe think we're faking our illness. But as someone said on Twitter, we go through life "faking our wellness".
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"Faking this illness"?
- Thread starter ruben
- Start date
How many times have we all (or at least those who can ever get out) been told we should get out more?
Yep, I got this all through my declining years. Encouragement to push through and get out. Then a setback with a decline in permanent function. Then people being like, "Hmmm, do you notice any correlation to what causes this?" Ummm, yeah you morons. Exactly the thing I said might do permanent damage that did the permanent damage that you were sure would be helpful and convinced me to do.
Ah well. Mostly I accept that even the friends who try to understand won't be able to do so. Because even I didn't understand when I was more mild-moderate. I kept pushing through and 'living my life' and didn't realize the degree it was taking a toll because I refused to accept I was just chronically ill and always would be. Unfortunately 'not accepting' doesn't appear to be a valid treatment.
There will always be people who refuse to accept that everyone else isn't exactly like them (healthy, energetic, loves brussels sprouts, whatever). Some people are willing to be educated, but some will fight to stay ignorant. Try to ignore those ones. If research does come up with a biomarker for ME, those people who denied it will probably just pretend that they never said that, because, of course, they can never be wrong.
If research does come up with a biomarker for ME, those people who denied it will probably just pretend that they never said that, because, of course, they can never be wrong.
Always amazing watching people incorporate new knowledge that directly contradicts what they claimed, but even if they are found to have loudly proclaimed their veracity in writing, they will just say some version of, "I actually was right at the time based on the knowledge we had, and the people who had it right were wrong because that wasn't the 'science' of the time."
I've seen this a lot lately on various podcasts and such, and it's a remarkable piece of 'reasoning'.