Someone has posted the MUPPETs poster on the Royal Devon and Exeter facebook page and commented, I have also commented, can anyone with a facebook account please add comments and like
https://www.facebook.com/pages/Roya...ndation-Trust/367990876670285?hc_location=ufi
@Countrygirl
comments from their facebook page
Helen Richardson This is appalling. An explanation is required immediately, I have contacted my MP and the GMC. How dare you?
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41 mins
Denise Nevill Is M.E now a MUS?
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33 mins
Rhi Morgan This is quite possibly the sickest thing on the agenda
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19 mins
Molly Morriss I am shocked by this on a number of levels. Firstly it is an appalling choice of names MUPPETs; derogatory, ridiculing and mocking, it certainly does not give the impression of taking these illnesses seriously, which is what is needed as there is a great deal of prejudice within the NHS and the RD&E towards patients with ME and other conditions listed in this programme. Secondly, ME / CFS is defined by the WHO as a nuerological condition and recognised by the UK government as such. It is classed by the Institute of Medicine as a" serious and debilitating condition which causes significant impairment and disability", "a complex, multi-system and often devastating disorder" they conclude that it is biological, NOT psychological in nature and that suffers are often stigmatised by health practitioners who are misinformed and uneducated as to the reality and nature of this disease. It is also classed as a disability in this country and as someone who suffers from this disability, I view the the title as discriminatory and prejudice, ridiculing and dismissing me and others suffering from this disability, precisely because of the disability we suffer from. Thirdly I expect a lot better from the RD&E. This is extremely poor science and poor practice, based on a purely invented belief system not on scientific evidence. There is now so much scientific evidence as to the biological nature or ME, POTS, and EDS that is continually ignored while these misleading outdated views are continually perpetuated. I was so appalled by the outdated and prejudiced treatment I received at the RD&E that I won't be returning. The RD&E is very quickly getting a reputation and one of the worsed and outdated in terms of their understanding and treatment of these conditions. Shame on you for allowing this to take place on your watch.
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Just now