Epididymitis

ChrisD

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About a month ago I started to randomly experience slight pain and stinging on my testicles, followed by waking up one day with a huge swelling on top of one of them that was approx. another half of a testicle size on top.

I saw an NHS GP who diagnosed it as epididymitis and prescribed a short 8 day course of Doxycycline, assuming that it was an infection of some kind. I used high dose Vitamin C for a few days and the swelling seemed to go down but it was still there, so I used the Doxy and it got mildly better over a week (Coincidentally my POTs seemed to get better too). But two weeks since the Abx it has been persistent in that there is slight swelling, stinging and aching - it also seems to be EMF triggered by appliances.

I have now been referred to a Urologist and am a little worried, so just wondering if this has happened to anyone else or if anyone can shed some light?

I have ME/CFS and also Lyme and co infections that includes some infection that could be loosely connected to causing this problem, also from my research I have found that HIV patients experience this as a consequence of immune suppression and being infected with the same coinfections that people with ME/Lyme are affected with i.e. CMV, Coxsackie etc.

It is interesting as a couple of NHS GPs have had me tested for both HIV and Syphillis based on my symptoms (Both negative).
 

ChrisD

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It may be varicocele too and if it's the left testicle, a narrowed left renal vein (Nutcracker Syndrome -NCS) can be the culprit.
Interestingly, NCS has been misdiagnosed as ME/CFS on occasion and it also causes POTS in about 20% of cases.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4294852/ Scrotal pain
Thanks Kangasue, It was actually the right hand one but this is very interesting and the POTS link in particular. On a facebook Lyme group someone suggested to me that it could be Mycoplasma Pneumoniae - apparently its becoming a more common symptom of that.
 

kangaSue

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@ChrisD it's only a left sided varicocele that can have a POTS link as far as I am aware. Having a right sided varicocele is actually quite rare and it can be associated with having a pancreatic tumour or having an annular pancreas sometimes too so best to be on the safe side and have the testicular vein checked out to make sure it's not obstructed.
 
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