Treatment Options
Hanchuchu,
In the early days of AIDS, very few lived to see research and treatment options.
However, those who did survive used antibiotics to combat the secondary infections/symptoms caused by immune system destruction.
Specifically they used wide spectrum antibiotics, or antibiotics that will kill a wide variety of infectious diseases. Bactrim was top of the list. Based on the white furry tongue symptom, I would add a good antifungal like Nystatin or Ketaconazole. Also, if suffering from diahrhea and wasting (losing weight), find something for that. Do a search on AIDS by symptom and look for treatment options that you can get access to in China.
If you cannot get antibiotics in China without a doctor prescription you have two options:
1) Have a chinese doctor diagnose you with thrush (white tongue) and maybe bronchitis (lungs) and request a broad spectrum antibiotic for bronchitis if you can. Maybe you can find a compassionate doctor who is willing to work the system to help you. This would be the best option, if possible. Someone with an afflicted friend or family member maybe.
2) Order on your own over the internet. India offers cheap (by U.S. standards, probably expensive by Chinese standards) antibiotics over the internet - but do research on the companies to make sure they are reliable as there are also many companies who will take your money and never get you antibiotics.
So best help is the same as we in the U.S. have - mainly self-help to survive another day. Keep doing AIDS secondary infections and symptom relief research when you can and encourage others to do the same and share on the boards you are posting on. Translate what I have said here and put on the chinese boards and ask others to spread and share means and sources as discreetly as possible on where/how to get antibiotics, antifungals, and other effective treatments.
I would maybe consider antivirals as a last resort if nothing else is working. There are three or four problems with antivirals: costly, many are very toxic and dangerous to use, they only target one virus and usually not 100% and they are probably hard to find on your own.
But if you're facing death, what's a little liver or kidney damage from trying and anti-viral? Personal judgement call there.
One last note: Getting a doctor or doctors who will at least monitor blood levels for you would be very helpful to know you're not damaging your liver or kidneys and what impact if any the treatment is having on immune system markers. So even if you can't get doctors to treat you for AIDS like symptoms, tell them you have other diseases based on your symptoms that they will treat with antibiotics. You and others like you need to research most likely diseases you will be treated for and go for it!
I've got bad news: No one is coming to the rescue anytime soon that will make a difference here or in China. If you want to live, you're going to have to fight for it. Everyday little by little, things will change with persistence and then help will come, but you've got to figure out on your own as a community of the afflicted how to survive until that day comes.
Good luck to all those afflicted and God bless. And may help come sooner in your case than it has for CFS, Fibro, Lyme and AIDS. But don't count on it and take action accordingly. Reaching out on boards like this for suggestions is a great start.
Get on AIDS message boards and ask about treatments for specific symptoms that are antibiotic related or things you can get access to. Ask them for strategies - they're way smarter than us, as they have billions in funding and a "real" disease status and we don't...after 25+ years!
The only good thing CFS has going for it is it (usually) kills you real slowly, but what you have does not sound like you have that kind of time and nor do you want to use CFS as a model for how to get help. Clearly, we as a community suck at it so far.
On Thymopentin: Anything listed as an immune system modulator is EXACTLY what should help keep you alive if it works building back up your immune system faster than the disease tears it down. In U.S., it's very easy to find out information about medications by googling their name. Here's a link on thymopentin if it isn't blocked:
http://www.aegis.org/pubs/atn/1991/ATN12307.html
Hanchuchu, if you're really fighting for your life, you need to be less afraid of potential side effects from medications and take them. Simply monitor side effects with your doctor. Remember, doctors who kill patients tend to be unpopular, so they're going to try to stick to things that are reasonably safe. Make sure they monitor you if there are potential serious side effects as mentioned above. But if you have this already, what are you waiting for? Take it already or read up, decide it's safer than dying and then take it! And count that as a major success that you've gotten access to a really solid treatment option.
One symptom that is very dangerous if it goes unnoticed is anxiety and excessive fear or paranoia even. Things that normally wouldn't scare you totally freak you out when you're really sick and fatigued. A famous American Football coach made the observation that "fatigue makes cowards of us all". Remember that, and share that with others afflicted. Seek outside counsel from others as you are here and if you can, get antidepressants and/or anti-anxiety medications if at all possible. They can help alot.