Really, they approved you for CFS without a lawyer? What was your supporting evidence? Were your doctor's notes detailed? Did you have function and pain diaries?
It was a long time ago but here's a summary as I remember it.
I stopped working in Sept 2000 and filed later that year (Dec, I think?). My primary medical evidence was an abnormal Tilt Table Test. My cardiologist and my primary care physician wrote letters. I also had letters from my former boss and one co-worker. And a letter from my husband (and some SSA form he had to fill out).
I can't remember a lot of the other details. I did not have any diaries.
I think one factor which helped me was that I had been sick since 1990. I had gone on and off medical leave (covered by my short term disability insurance, part of my employee benefits, but I paid the premiums) for the past 10 years.
So, I think my work history made it pretty obvious to Social Security that I did not just become sick and immediately file for long term disability. I had been trying to stay at work for all that time. But after my endometriosis surgery in 2000 I just never recovered enough to get back to work even part time.
Also, my salary as a software engineer was so much higher than the pittance that SSDI pays. Aside from the fact that I loved my job, and I hated the idea of having to file for long term disability, it would not make any sense from a purely financial point of view. Why would anyone file for SSDI when making that much money? If someone was only interested in the money angle then it would be much easier to slack off at work and coast along instead of pretending to be sick and trying to file for SSDI.
Finally, my application was filed shortly after the Tilt Table Test was recognized by SSA one of the tests that supports a CFS diagnosis. See
http://www.ssa.gov/OP_Home/rulings/di/01/SSR99-02-di-01.html for a copy of the document adopted in 1999 (this has now been replaced by a newer version at
http://www.ssa.gov/OP_Home/rulings/di/01/SSR2014-01-di-01.html ).
To be honest, I don't really know exactly why I got approved when so many other claims get turned down. Some combination of medical evidence, doctors' letters, personal details, timing, luck -- who knows?
I know I'm not the only one who has gotten SSDI without a lawyer. I've seen posts by other folks who have done it (on this forum and other forums). I do know that it's not all that common but it's definitely not impossible.