Gemini
Senior Member
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Open-access (Sept 2019) written by Ken Friedman, Lucinda Bateman, Alison Bested, and Zaher Nahle with a profound observation and plan to address it, at last:
Excerpt [my bold and paragraphing]
This monograph, despite its excellent and informative articles, lacks any article focused on what is termed the severely affected: those patients so afflicted by ME/CFS that they are unable to leave their homes or rise up out of their beds.
This silent cohort of ME/CFS patients, estimated to be as high as 25 percent of the ME/CFS population, has never appeared in the peer-reviewed ME/CFS literature.
The interest in the articles contained herein has given rise to the invitation to create a subsequent, invited, themed issue, entitled, “ME/CFS—The Severely Affected.”
Clinicians and researchers are writing articles for that issue now. When completed, a description of ME/CFS throughout the range of its severity, and the resources that can be martialed to treat patients suffering from ME/CFS, will finally be available in the medical literature.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6759795/
Excerpt [my bold and paragraphing]
This monograph, despite its excellent and informative articles, lacks any article focused on what is termed the severely affected: those patients so afflicted by ME/CFS that they are unable to leave their homes or rise up out of their beds.
This silent cohort of ME/CFS patients, estimated to be as high as 25 percent of the ME/CFS population, has never appeared in the peer-reviewed ME/CFS literature.
The interest in the articles contained herein has given rise to the invitation to create a subsequent, invited, themed issue, entitled, “ME/CFS—The Severely Affected.”
Clinicians and researchers are writing articles for that issue now. When completed, a description of ME/CFS throughout the range of its severity, and the resources that can be martialed to treat patients suffering from ME/CFS, will finally be available in the medical literature.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6759795/