Updates, Updates. First of all, I saw Dr. CHia again for appointment #2 at about 4 months after the first appointment. more on that later. I am also seeing Stanford CFS clinic in about three weeks.
the non-flu flu-like illness lasted pretty bad for about two weeks, continued in various forms for another 2-4 weeks. and at almost 2 months later seems like it was in the past. WHat is very interesting is that in the aftermath of this non-flu flu-like illness I have managed to get off of Ambien and generally sleep at night. I still wake up during the night but I sleep much better than I have in a while (and without ambien!). which seems like a huge improvement to me. I have managed to get off of ambien for short periods of time before, but this seems better than those periods. It has been at least 2 weeks without ambien. I just went all the way to california and came all the way back without ambien (except for the flight, but that is a permitted exception in my book). Only time will tell if it holds. I do take 25mg of seroquel for sleep, but I hope to titrate off of that shortly.
My poop looks bad again (usually soft and mushy, frequent diarrhea). I suspect there is still something everyone is missing, but one thing at a time.
Dr. Chia increased my Equilibrant to 3x2 day (6 total/day) He also gave me instructions to take inosine and possibly eventually start LDN (which was previously prescribed, but I hadn't started) I'll see him again in 4 months.
