Early response to equilibrant

[Gingergrrl]

Is the danger to doing oxymatrine if you haven’t had a full workup for autoimmunity overstated? If anything I think I may have Hashimoto but not other autoimmune diseases

I don't know if it is overstated but when I did a one-time consult with Dr. Chia in early 2016, he said that I was not a candidate for oxymatrine/Equalibriant b/c I had Hashimoto's (and MCAS). At that time we did not yet know that I had a positive ANA, 7/9 positive Cell Trend autoantibodies, Autoimmune POTS, and the positive autoantibodies from Mayo Clinic (GAD65 and LEMS autoantibodies). I found out all of that other stuff starting the following month but from Hashi's alone, he said I was not a candidate to try it.

Edit: Can you get tested for Hashi's if you suspect that you have it?

 

[frozenborderline]

I don't know if it is overstated but when I did a one-time consult with Dr. Chia in early 2016, he said that I was not a candidate for oxymatrine/Equalibriant b/c I had Hashimoto's (and MCAS). At that time we did not yet know that I had a positive ANA, 7/9 positive Cell Trend autoantibodies, Autoimmune POTS, and the positive autoantibodies from Mayo Clinic (GAD65 and LEMS autoantibodies). I found out all of that other stuff starting the following month but from Hashi's alone, he said I was not a candidate to try it.

Edit: Can you get tested for Hashi's if you suspect that you have it?

I should do a test for hashis but have been too sick to go out to my pcp even. When I improve a little and do go out hopefully I will get that test. I think I should have a very full workup for autoimmunity however

 

[godlovesatrier]

Updates, Updates. First of all, I saw Dr. CHia again for appointment #2 at about 4 months after the first appointment. more on that later. I am also seeing Stanford CFS clinic in about three weeks.

the non-flu flu-like illness lasted pretty bad for about two weeks, continued in various forms for another 2-4 weeks. and at almost 2 months later seems like it was in the past. WHat is very interesting is that in the aftermath of this non-flu flu-like illness I have managed to get off of Ambien and generally sleep at night. I still wake up during the night but I sleep much better than I have in a while (and without ambien!). which seems like a huge improvement to me. I have managed to get off of ambien for short periods of time before, but this seems better than those periods. It has been at least 2 weeks without ambien. I just went all the way to california and came all the way back without ambien (except for the flight, but that is a permitted exception in my book). Only time will tell if it holds. I do take 25mg of seroquel for sleep, but I hope to titrate off of that shortly.

My poop looks bad again (usually soft and mushy, frequent diarrhea). I suspect there is still something everyone is missing, but one thing at a time.

Dr. Chia increased my Equilibrant to 3x2 day (6 total/day) He also gave me instructions to take inosine and possibly eventually start LDN (which was previously prescribed, but I hadn't started) I'll see him again in 4 months.

Hi Jim,

How was your follow up appointment with Dr Chia? and how did you feel when you went up to 3x2 equilibrant tablets per day?

Thanks.