I don´t know which I find more surprising,
@snowathlete, that KDM did not stop the antibiotics on hearing that you were passing blood, or that you didn´t (I am not blaming or doubting you). I think this shows that if you do get treatment from an ME doctor in particular, you really need to research as much as you can yourself. I know you have since found out a lot about the gut, but I think it is essential to research things as you are prescribed them. I know some ME patients are too tired/brainfogged to do so, so I fully understand why people don´t, but I think in that case if you don´t have a primary care doctor who is going to keep a close eye on things for you (as you would if the NHS system actually worked), then you are taking a risk regardless of which ME doctor you see.
I personally have improved a lot from KDM´s treatment, but equally important in my improvement has been me finding out things about diet for myself, as no doctor I have seen (including an NHS gastroenterologist) has given me helpful advice (KDM did say to leave out sugars, but I have found I need to leave out much more than this) with regard to this. That same NHS gastro I mentioned earlier also ordered a colonoscopy to confirm a completely spurious diagnosis, and when I read about the possible risks associated with that I decided that I should not go through with it.
This was only partially addressed to Snowathelete by the way. I think anyone who undergoes treatment from any ME doctor should be aware of this.