Dysautonomia

[glenp]

Here are some treatments used for dysautonomia

http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Treatments/show/171?cid=196


glen

 

[Dreambirdie]

Are there good natural remedies as well? I can't tolerate drugs.

 

[helsbells]

Are there good natural remedies as well? I can't tolerate drugs.

If you find any can you let me know too! Only thing which helps is the day before a cold/virus (Rare and not too practical!!) and is worsened with allergic responses which is pretty much continual.

 

[ahimsa]

thanks for the link

Thanks for the link, glenp - that's definitely one of the most comprehensive lists that I've ever seen! I love that they even have "low tech" suggestions like dietary modification (smaller meals, tyramine avoidance) and cooling devices.

Too bad that a couple of the entries have ?? in the pros/cons section but there's a lot of good information there.

 

[ramakentesh]

ive tried a variety of herbs. Licorice was quite helpful for years but then stopped working for me; butchers broom was amazing for a week then stoppped working and left me worse.

 

[helsbells]

ive tried a variety of herbs. Licorice was quite helpful for years but then stopped working for me; butchers broom was amazing for a week then stoppped working and left me worse.

What kind of liquorice? -

 

[ramakentesh]

any with the glyrc something acid in it. Infact I was so sensitive to it that I had to just eat the candy! Tea gave me a week of migraines. Its a balancing act but it worked wonders for me for years and years before it stopped working. Butchers broom was the closest ive felt to normal in years. but it stopped working super quick.

 

[helsbells]

Thanks for answering only just seen reply - it is odd how big a component this dysautonomia is. the only time i fleetingly have an improvement is, as I said already, the day before a proper bug (which I rarely get now anyway) i have also had that exp of things over the years, not making as grand a difference as yours but feeling like something was working and then quickly stops and usually in my case I become intolerant. it is maddening. Liquorice tea irritates my bladder altho it tasted nice, I tried the sweets yesterday LOL after seeing your other post I will try glycerized tbs and see what happens, Many thanks

 

[glenp]

there is a documentary available here - if you sign up they will send you a dvd in the mail -- there is lots of good info at that site


http://www.dinet.org/Documentary.htm for the dvd

 

[Sallysblooms]

•Examples: CoEnzyme Q10 {Ubiquinone},Carnitine, Vitamin B-Complex, Vitamin E, Vitamin C, Alpha Lipoic Acid,

I have had wonderful help with these and other good supplements. I have guidance from my doctors that research supplements, a schedule I stick to daily. Good brands, not just any brands. Lipoic Acid is good for the nerves so they can heal and work to help the blood vessels do the right job.

I do not want to take prescriptions. My doctor understands that I can't and prefers supplements.

Carnetine is so good for brain fog. I take the liquid. I take many supplements and the Adrecor has finally been helping the POTS greatly. I am full of hope.

 

[ahimsa]

I'm sure many of you already know about the POTS Place web site at http://www.dinet.org/index.htm (aka, Dysautonomia Information Network or DINET). But for any new folks here are a couple more links:

What helps: http://www.dinet.org/what_helps.htm
(the non-pharmaceutical methods are listed at the bottom of the page)

What to avoid: http://www.dinet.org/what_to_avoid.htm

Of course, what works for each individual varies quite a lot but there is a lot of good information there.

 

[glenp]

Brittany Murohy's death and Dysautonomia

Brittany's brother did this video - its interesting


http://hopealways.wordpress.com/2010/05/12/brittany-murphys-death-and-dysautonomia/