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I wondered if anyone who is being prescribed these medications in the UK would be able to give me a rough idea of the cost?
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Droxidopa (Northera) and Octreotide Cost UK
- Thread starter emmablondevoyage
- Start date
Just in case you don’t hear from anyone who can answer this, I wanted to suggest that you might be able to get this information from Dickson Chemist.
https://shop.dicksonchemist.co.uk/homepage2/
I contacted them with a similar sort of question and the staff were very helpful and were happy to tell me the cost of a medication, even before I had the prescription.
(Please excuse my butting in if you have already tried this or my suggestion isn’t helpful.)
https://shop.dicksonchemist.co.uk/homepage2/
I contacted them with a similar sort of question and the staff were very helpful and were happy to tell me the cost of a medication, even before I had the prescription.
(Please excuse my butting in if you have already tried this or my suggestion isn’t helpful.)
- Messages
- 46
Thank you so much! how did you contact them? did you need to give them the dosage of the medication or not? thanks againJust in case you don’t hear from anyone who can answer this, I wanted to suggest that you might be able to get this information from Dickson Chemist.
https://shop.dicksonchemist.co.uk/homepage2/
I contacted them with a similar sort of question and the staff were very helpful and were happy to tell me the cost of a medication, even before I had the prescription.
(Please excuse my butting in if you have already tried this or my suggestion isn’t helpful.)
@emmablondevoyage , I emailed because it is more convenient for me, but I am sure you could phone.
I asked about the cost of one packet of medication, and there was only one version, so that was straightforward. (At the time, I did not know exactly what dose I might be taking. I just wanted to know how much one packet would be as a starting point.)
I think I just searched around various sources (e.g. govt databases, pharmacy websites) until I found a listing in the UK.
e.g. Here are listing for octreotide: https://www.medicines.org.uk/emc/search?q="Octreotide"
That website doesn’t list droxidopa, however. Possibly it’s not available in the UK?
But the staff at Dickson seem very helpful, so I’d just ask about the generic drug name and see how you go. You can also ask about the normal vs private prescription cost if that is relevant.
Looking through these studies will give you some idea of possible doses for POTS:
https://pubmed.ncbi.nlm.nih.gov/?term=octreotide+pots&sort=date
So if you can find out the cost of one vial, you can estimate from there. I am sorry, but I don’t know whether you can draw multiple doses from one vial. I did look into octreotide subcutaneous injections a few years ago, but hit a dead end, and then found out later that it wouldn’t be suitable for me, so I’m afraid I didn’t get into the practicalities of administering it.
It seems there was a strong team at the Countess of Chester Hospital at one time that were treating a few POTS patients with octreotide and published some of the research articles I linked on PubMed. Whether the team still exists, or that knowledge, I don’t know, but it’s something you could look into if elevant. Maybe POTS UK could help you contact the lead doctor from the case studies?
If droxidopa isn’t available in the UK, you may be able to order it from an overseas pharmacy. Your specialist should be able to advise on how to do this, or you could ask on a UK POTS support group on Facebook or contact POTS UK.
* I just realised that I have assumed you are asking for POTS reasons, not OH or other orthostatic problem. Apologies if POTS info not relevant. Info on OH is easier to find and also I think you could contact a Parkinson’s support group if you have trouble finding out how to get droxidopa.
I asked about the cost of one packet of medication, and there was only one version, so that was straightforward. (At the time, I did not know exactly what dose I might be taking. I just wanted to know how much one packet would be as a starting point.)
I think I just searched around various sources (e.g. govt databases, pharmacy websites) until I found a listing in the UK.
e.g. Here are listing for octreotide: https://www.medicines.org.uk/emc/search?q="Octreotide"
That website doesn’t list droxidopa, however. Possibly it’s not available in the UK?
But the staff at Dickson seem very helpful, so I’d just ask about the generic drug name and see how you go. You can also ask about the normal vs private prescription cost if that is relevant.
Looking through these studies will give you some idea of possible doses for POTS:
https://pubmed.ncbi.nlm.nih.gov/?term=octreotide+pots&sort=date
So if you can find out the cost of one vial, you can estimate from there. I am sorry, but I don’t know whether you can draw multiple doses from one vial. I did look into octreotide subcutaneous injections a few years ago, but hit a dead end, and then found out later that it wouldn’t be suitable for me, so I’m afraid I didn’t get into the practicalities of administering it.
It seems there was a strong team at the Countess of Chester Hospital at one time that were treating a few POTS patients with octreotide and published some of the research articles I linked on PubMed. Whether the team still exists, or that knowledge, I don’t know, but it’s something you could look into if elevant. Maybe POTS UK could help you contact the lead doctor from the case studies?
If droxidopa isn’t available in the UK, you may be able to order it from an overseas pharmacy. Your specialist should be able to advise on how to do this, or you could ask on a UK POTS support group on Facebook or contact POTS UK.
* I just realised that I have assumed you are asking for POTS reasons, not OH or other orthostatic problem. Apologies if POTS info not relevant. Info on OH is easier to find and also I think you could contact a Parkinson’s support group if you have trouble finding out how to get droxidopa.
- Messages
- 46
this is so so helpful thank you!!!@emmablondevoyage , I emailed because it is more convenient for me, but I am sure you could phone.
I asked about the cost of one packet of medication, and there was only one version, so that was straightforward. (At the time, I did not know exactly what dose I might be taking. I just wanted to know how much one packet would be as a starting point.)
I think I just searched around various sources (e.g. govt databases, pharmacy websites) until I found a listing in the UK.
e.g. Here are listing for octreotide: https://www.medicines.org.uk/emc/search?q="Octreotide"
That website doesn’t list droxidopa, however. Possibly it’s not available in the UK?
But the staff at Dickson seem very helpful, so I’d just ask about the generic drug name and see how you go. You can also ask about the normal vs private prescription cost if that is relevant.
Looking through these studies will give you some idea of possible doses for POTS:
https://pubmed.ncbi.nlm.nih.gov/?term=octreotide+pots&sort=date
So if you can find out the cost of one vial, you can estimate from there. I am sorry, but I don’t know whether you can draw multiple doses from one vial. I did look into octreotide subcutaneous injections a few years ago, but hit a dead end, and then found out later that it wouldn’t be suitable for me, so I’m afraid I didn’t get into the practicalities of administering it.
It seems there was a strong team at the Countess of Chester Hospital at one time that were treating a few POTS patients with octreotide and published some of the research articles I linked on PubMed. Whether the team still exists, or that knowledge, I don’t know, but it’s something you could look into if elevant. Maybe POTS UK could help you contact the lead doctor from the case studies?
If droxidopa isn’t available in the UK, you may be able to order it from an overseas pharmacy. Your specialist should be able to advise on how to do this, or you could ask on a UK POTS support group on Facebook or contact POTS UK.
* I just realised that I have assumed you are asking for POTS reasons, not OH or other orthostatic problem. Apologies if POTS info not relevant. Info on OH is easier to find and also I think you could contact a Parkinson’s support group if you have trouble finding out how to get droxidopa.
- Messages
- 46
I have OH and POTS, I'm already on slow sodium, mestinon, wearing compression, taking electrolytes, eating extra salt, increasing hydration. I'm about to start desmopressin and fludrocortisone.
Midodrine helped but couldn't tolerate the side effects. I can't take ivabradine bc of interaction with other meds I'm taking so droxidopa and ocreotide are the back ups.
Do you have OH and POTS too? Are you in the UK?
Midodrine helped but couldn't tolerate the side effects. I can't take ivabradine bc of interaction with other meds I'm taking so droxidopa and ocreotide are the back ups.
Do you have OH and POTS too? Are you in the UK?