Dr Ros Vallings speaking in Auckland, New Zealand: 6th October 2018

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Hi all,

From the ME Auckland Facebook page:


We are pleased to announce that Dr Ros Vallings will be speaking at the ME Auckland AGM! All are welcome to attend - details below


Dr Vallings will be holding an "ask me anything" session, whereby you can submit a question for her to answer.

Got a question for Dr Vallings? We'd love to hear it! Please post your question in the thread below, or email to manager@meauckland.org.nz so we can submit it on your behalf.

The session will be recorded and we will publish the video including her answers.

Dr Ros Vallings is widely regarded as New Zealand's leading ME/CFS expert. You can find out more about Ros here: http://www.drvallings.co.nz/about-ros.html

Aside from hearing Dr Vallings speak, the ME Auckland AGM is an opportunity to learn more about what our organisation has been doing for people with ME/CFS and/or FM over the last year, meet other members of the community and enjoy some tasty nibbles!

All are welcome


Date: Saturday, 6th October 2018
Time: 1.30pm to 3.00pm
Venue: Sandringham Community Centre Mainhall, 18-20 Kitchener Rd, Sandringham, Auckland , 1025

 
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Cheers for the update. Have there been any questions listed already? Thank you for opting to record & post the meeting online.

A few I have pooled from a group focused around the mixed paths to diagnosis & difficulties with specialist referrals, as well as lack of access to health specialists:

Preamble: As it affects multiple systems and organs it would be difficult for anyone to be able to see even a couple of specialists publicly so there is a fragmented patchwork approach that leads many people astray.
Q part 1: It would be interesting to find out if the public system has a process to diagnosis ME, and approach to treat it versus the more available private specialists who are more familiar with it?
Q part 2: Even discounting autoimmune conditions require several tests through the public system. What specialists would/should be available, and what tests would be used?
 
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No problem and thanks for your question!

We received around 20 questions which should be plenty for Ros to talk too. They were due yesterday so we could send to Ros in advance, but will try and sneak your one in too :)

We'll send the video out to members once it's ready. Should be around a month and can join here if you want to receive the email:

http://www.meauckland.org.nz/join-us

Note membership is free :)
 
Messages
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Cheers for the update. Have there been any questions listed already? Thank you for opting to record & post the meeting online.

A few I have pooled from a group focused around the mixed paths to diagnosis & difficulties with specialist referrals, as well as lack of access to health specialists:

Preamble: As it affects multiple systems and organs it would be difficult for anyone to be able to see even a couple of specialists publicly so there is a fragmented patchwork approach that leads many people astray.
Q part 1: It would be interesting to find out if the public system has a process to diagnosis ME, and approach to treat it versus the more available private specialists who are more familiar with it?
Q part 2: Even discounting autoimmune conditions require several tests through the public system. What specialists would/should be available, and what tests would be used?
Hi @Blue Lantern

Tried to PM you Ros' answer but the forum wouldn't let me. Please feel free to drop me a message and I'll send to you :)
 
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Thank you. Yes some forum features have been a bit buggy, still trying to work way around. Heard the talk was recorded, is there an online link to it you can post?
Sure thing - will post when it's ready. I think the editing is still being done