Everyone needs to tone down the crazy talk. No, Retrovirology is not a bad journal for publishing this, the articles today have valid points. We can not go attacking anyone who disagrees with WPI or Alter\Lo or publishes negative findings on XMRV. This is how science works, everything needs to be fully vetted, both sides need to be heard. Of course you will see scientist's egos flaring up on controversial topics, and sometimes one sides story gets more attention then the other that's just how science works. Its not a conspiracy, it's not people being evil, it's just how the system works.
The more CFS patients make character assassinations of people\journals\media outlets who disagree with the XMRV-CFS link the more CFS patients just look like a bunch of nut cases and the deeper the divide between the two sides becomes.
Its the way in which its done and the timing that really shows how much these people care about us, thats not disputing there right to show there science, thats calling them clever heartless calculated excuses for people.
No not everyone no not all of them, but some of them yes, and sometimes its hard to tell exactly who
The devide as you put it, was one they created long ago, and continue to create even now just before christmas, you can extend your hand to them in understanding and friendship if you choose thats your right, but excuse me if i dont feel like it.
Who cares if they think were nuts anymore, can you really hear yourself, Wake up theyve thought we were nuts long ago, long before we did anything wrong and said anything to defend ourselves. and many continue to think like that, and through clever manipulaition of there so called science and timing. They are still sending out a message to us, that nothing has changed.
But something has changed, prominent scientists of the like of Judy Mikovits and Kenny Mierlier, are now showing how angry they are at this continued manipulation of science and there methods of presenting it, Judy a while back called the situation in the UK abuse, and shes not wrong, if you can not see that, and do not agree that is indeed happening, then sorry your more blind than you think, everytime some one says what your saying im going to say no, thats wrong, enough is enough. i will not, i refuse to pamper to these sad manipulations, to put us all back to where they think we all belong.
I can read between the lines. and they dress it up as just science, pure and innocent, well wessley has been doing that for years, causing untold harm to many many paitents in the uk and even hes influence spreads abroad. These researchers are not all bad i agree with you on that, But the conclusions they make on one of those papers clearly was a bit of a stretch, now we have heard from Judy and the others, it was clearly geard to killing this xmrv DISCOVERY anyway they can, thats not science, sorry its not, its politics based on bias and opinions, mostly negative ones im afraid, I dont like disagreeing with fellow paitents on here, and i respect your veiws, but you must also respect my veiws, and my right to say what i feel from the heart, saying enough of this crazy talk, is like saying please shutup. Well im not saying to you please shut up, im saying to you please open your eyes, your right to have your opinion and no one should ever be able to take that away, but i also have those rights to, and would appreciate just a little understanding as to why i might have them, and more importantly my right to have them. we may make the devide greater i agree with you on that, but its better than pussy footing around and waiting for them to stab us in the back yet again, just when you think that you have bridged that devide. Sorry i think that will always turn out to be wishful thinking on your part, many have tried to bridge this gap for years, and some ( not all ) will only stop when the science of the caring absolutely and 100% proves them wrong, then they will likely go away and retire quitely with bitterness in there hearts. But we shall be where we all ways should have been.ACCEPTED AND CONSIDERED
Peace and merry christmas to all fellow paitients, even if we cant agree on this, your motives on this are sensible. just i feel a liitle misguided. but i guess you will likely feel the same about my words, ask Sophia mirzas mother if she thinks i might be telling the truth. Enough is enough LJS