Hi Carol,
As filfla4 has mentioned the first appt with KDM is all about obtaining information, history and taking blood for testing. After the results are known treatments can start. The blood results take several weeks or more.
I've been on treatments by KDM all this year including anti-biotics, nexavir, probiotics and supplements and continue to do so. I have made small and noticeable improvements in cognition and energy though it's not there all the time. I feel less sick overall and notice my gut less.
I rate myself about 30% functional which hasn't changed much though I can do a little more on some days. It's hard to quantify as I'm still a bit up and down so I can only put the emphasis on feeling less sick, less of that poisoned feeling, and that's good. I can socialise a bit more easily too, dealing with the noise of different conversations at once.
I've been fortunate to have an excellent doctor here in Australia who has helped me greatly over the past 8 years. KDM has additionally given me some better health which I'm grateful for. One thing that can happen is that the treatment can make you feel worse initially and then you'll pick up after a while. For me it was a couple of months of feeling more worn and exhausted than usual but it was nothing like the worst that I've experienced with this disease.
And now that there's the Gc-MAF treatment for xmrv/mlv's hopefully it will help many more.
All the best in whatever you decide to do.