Dr. Lisa Nagy Lecture - Environmental Medicine

Messages
24
Likes
9
Location
DFW
Dr. Nagy is an energetic speaker and was taught in medical school to believe the patient. Isn't that novel concept for those of us who have had to deal with doctors who don't believe us?

She covers a lot of territory: lyme, cfs, autism, mold, bacteria, viruses, chemical /food sensitivities, and more. One of the interesting things she mentioned was the difference in the way men and women respond to mold exposure.

Dr. Nagy was debilitated by mold, so she has a great appreciation and dedication to helping patients, teaching doctors, and has become an outspoken advocate. It took her many years to recover and she is now able to work again. She may be a good doctor for those living near her office in Martha's Vineyard.

I hope you enjoy her and her lecture as much as I did. She's quite the lady and I'm glad she's on our side. All feedback is welcomed. http://present.knowledgevision.com/account/kv-pr/subaccount/vpm/link/Nagy_Penn_Feb2012
 
Messages
24
Likes
9
Location
DFW
Hi GG,

Wow! The more I learn about the problems caused by mold exposure, the more it seems to lead to so many serious medical situations. He sounds like he would be a very astute and caring doctor for you? Are you taking the Ampligen?

Regards,
Susan
 

*GG*

senior member
Messages
6,331
Likes
5,003
Location
Concord, NH
Yes, I think he is very good, he does all kinds of "alternative" modalities that most Drs wouldn't bother with. IVs, acupuncture, has a hyperbaric chamber, allergy testing...

He will spend as much time with you as you demand, so don't expect your appt to start on time, can be an hour or so. Although they will bring you to a room, so you can rest.

GG

PS No I am not on Ampligen, cannot afford that! Perhaps if it gets FDA approved my insurance will cover it, but that's a ways off! I am doing ok, so I would not want to risk my health, I would wait for years until I know how people do long term. Sounds good, but it would seem there are some cons? So obviously I am not that desperately ill!
 
Messages
24
Likes
9
Location
DFW
Hi GG,

He sounds like a wonderful doctor. I'm thankful you are receiving such good care and don't need to consider Ampligen treatment. I know very little about the medications the patient community here is taking. I started reading this forum because there are so many similarities in symptoms and needed supplements with what I've been diagnosed with: Lyme and mold illness.I believe I would easily be diagnosed with CFS or ME if I saw a specialist for those conditions.

Long story short: I'm at a crossroads in deciding how to proceed. Right now, my primary need is a safe home where I can get away from molds and chemicals so I can start moving forward into some kind of affordable treatments. Finding a safe place to live is looking like mission impossible in the metro where I live. Until then, I'm treading water, so to speak.

Warm regards,
Susan
 

PhoenixDown

Senior Member
Messages
395
Likes
756
Location
UK
What she said about researchers prioritizing protecting their reputations over correcting science, that really struck a chord with me, it's so true.
 
Messages
14
Likes
36
@LizAtRest , have you heard of this doctor? Apparently her office is on the Vineyard!
Hi! Yes I have... I haven't met with her, though I may for informational purposes sometime soon. What stops me from being really gung-ho, so-to-speak, is that she costs THOUSANDS upon thousands of dollars in the majority of cases and it seems like she advocates for a Marie Kondo-ing of all your possessions and house, except instead of joy you only get to keep whatever she can certify has no mold or toxins, which is what she believes is the cause of most illnesses like ours. This is the conclusion I have come to from seeing video interviews with her and reading reviews from her patients. Many patients rave about her, but... I haven't had an income in years, I don't have 10k to spend nor can I move to a new house... so I dunno.
 

RebeccaRe

Moose Enthusiast
Messages
971
Likes
4,234
Location
Massachusetts
it seems like she advocates for a Marie Kondo-ing of all your possessions and house, except instead of joy you only get to keep whatever she can certify has no mold or toxins
Oh dear. I'd like to think I'm not into material things, but when my father suggested that I try getting rid of all of my earthly possessions and moving to the desert, I couldn't even consider it. This was right after my mother died, so I told him that I had experienced enough loss and for the moment I'd rather be sick. If you don't have the resources to see her without hardship and the way she treats illness doesn't resonate with you, then there's absolutely no pressure.

On the bright side, the fact that her practice is local to you means that there must be other fatigued people hanging out somewhere on the Vineyard!
 

Shoshana

Northern USA
Messages
5,321
Likes
17,612
Location
Northern USA
I wonder if all of her patients become well. That is huge sacrifice, to give all that money, that we might need for other things, if we did have it, all for unknown results......

AND, to also give up lots of items that do bring us joy and comfort,
and those that tie us to our passed on relatives and ancestors....

and many of us have no way to move, no place within our budgets. And they don't let you remodel rental units!

I would wait till I heard that everyone who went to her is getting WELL. Try to be kind to yourself, @LizAtRest

@RebeccaRe , thanks for lightening up this topic, with your silver lining offered! ;):D
 
Messages
14
Likes
36
Oh dear. I'd like to think I'm not into material things, but when my father suggested that I try getting rid of all of my earthly possessions and moving to the desert, I couldn't even consider it. This was right after my mother died, so I told him that I had experienced enough loss and for the moment I'd rather be sick. If you don't have the resources to see her without hardship and the way she treats illness doesn't resonate with you, then there's absolutely no pressure.

On the bright side, the fact that her practice is local to you means that there must be other fatigued people hanging out somewhere on the Vineyard!
Haha gotta love the bright side... But funnily enough I haven't come across even ONE person with ME here. And I have looked! There is a member on here called @Vineyard1 and that is literally why I finally joined lol