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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My take home? "it's a passages virus."
Really nice presentation by the way.
Does anyone know if this video will be available soon?
Key question - What role does a retrovirus play; primary or secondary infectious agent.Viruses and CFSMy Current View
Infectious agents probably can trigger and perpetuate CFS
The agents cannot be fully eradicated by the immune system
There now is solid evidence that CFS can follow a new infection
It is possible that in CFS different infectious agents interact to cause symptoms
What Does a Strong Association of these MLVs with CFS Mean?
Is the Virus Primary?
Is it a cause of CFS, either acting alone or in combination with other viruses that live
within us
OR
Is the Virus Secondary?
Is it inside most of us, asleep, but gets reawakened by the immune dysfunction seen in CFS
it is not a cause of CFS
I was glad that he mentioned the Dubbo, Australia study, which I think was one of the best bits of science to happen in years. I asked Suzanne Vernon last Saturday whatever happened after the initial study, and she said they ran out of funding so had to discontinue it. What a shame, they could have learned so much by continued follow-up.