Trial By Error: My Time in Canberra
27 MARCH 2018
By David Tuller, DrPH
I’m in Sydney now, but last week I had a busy few days in Canberra. My hosts were the wonderful duo of Libby Steeper and Eleanor Flowers. They treated me like royalty and shepherded me around town to the various appointments they and others had organized.
As a representative of the local ME/CFS organization, Libby also joined me for the morning radio interview at ABC’s local affiliate. Eleanor, whose teenage daughter suffers from the illness, attended the meeting with NDIA. We hope that meeting has opened a door that will allow her and other advocates to maintain a dialogue with NDIA going forward.
Here’s Eleanor’s write-up of what we did, which she posted on the ME/CFS Australia Facebook page:
“Last week saw a blitz on action for ME/CFS during David Tuller’s 3-day visit to Canberra.
David spent time on Wednesday with ME/CFS researchers which was very helpful background for him to understand what’s happening in Australia. David, and researchers Chris Armstrong [from the University of Melbourne] and Fane Mensah