• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Dr David Tuller: More on the Royal Society of Medicine Webinar

Countrygirl

Senior Member
Messages
5,342
Location
UK
Over the weekend I spoke with someone with ME whose daughter had been her carer. However, the daughter left to train as a doctor under Prof Chew Graham, the subject of David's blog below. By the time the daughter returned home, she was convinced that her mum was psychiatrically ill as ME was portrayed as a mental illness by Prof C-G.

Now read the article below:

https://www.virology.ws/2020/10/04/...ia8bqw8ilVXNZGyQSSMeR6ObYoIH2c6J5Ipuy5iLnoFSM

Trial By Error: More on the Royal Society of Medicine Webinar


4 OCTOBER 2020

By David Tuller, DrPH
*October is crowdfunding month at Berkeley. I conduct this project as a senior fellow in public health and journalism and the university’s Center for Global Public Health. If you would like to support the project, here’s the place: https://crowdfund.berkeley.edu/project/22602

On September 24th, the Royal Society of Medicine hosted a webinar called “Long-COVID: Understanding the shadow of the virus.” In a previous post, I criticized one of the panelists, infectious disease expert Alastair Miller, on several grounds. He promoted graded exercise therapy, made unwarranted claims about recovery rates from CBT/GET treatments, and suggested that the PACE trial suffered only from “bad press” rather than methodological violations that appear to meet definitions of research misconduct.

Carolyn Chew-Graham, a professor of general practice research at Keele University in Staffordshire, also participated. Professor Chew-Graham is the main author of the Royal College of General Practitioners’ unfortunate online training program on CFS/ME, which I critiqued here. That program, METRIC, is based squarely on PACE and its so-called “sister trial,” the FINE trial. (Professor Chew-Graham was a co-author of the FINE trial.)

These trials, and the CBT/GET paradigm itself, are grounded in the notion that what patients say about their symptoms should be dismissed and disbelieved. To recover, patients must learn to replace negative thoughts about their abilities and energy levels with positive ones and overcome their irrational phobias about exertion. The interventions rely on the unproven hypothesis that deconditioning, and nothing pathophysiological, is the cause of the prolonged debilitating symptoms.

Professor Chew-Graham is also a prominent player in the field of so-called “medically unexplained symptoms.” Since she and her colleagues identify CFS/ME as an MUS, the theoretical approaches are pretty similar. Deploying flawed research, the powerful MUS lobby in the UK has expended enormous efforts to ensure that GPs shunt off patients whose symptoms they don’t understand to psycho-behavioral interventions, rather than referring them to medical specialists.
 
Last edited by a moderator:

Art Vandelay

Senior Member
Messages
470
Location
Australia
Over the weekend I spoke with someone with ME whose daughter had been her carer. However, the daughter left to train as a doctor under Prof Chew Graham, the subject of David's blog below. By the time the daughter returned home, she was convinced that her mum was psychiatrically ill as ME was portrayed as a mental illness by Prof C-G.

I'm willing to bet that Chew-Graham is tailoring her public views on GET depending on the audience and she really hasn't changed her mind at all. It's a ploy straight from the Simon Wessely handbook.
 

Countrygirl

Senior Member
Messages
5,342
Location
UK
I'm willing to bet that Chew-Graham is tailoring her public views on GET depending on the audience and she really hasn't changed her mind at all. It's a ploy straight from the Simon Wessely handbook.

She also joined a Long Covid group I am in ............and she was kicked out. However, the group leader told me that Prof C-G has Post Covid ME now herself. (I haven't had this confirmed yet.) She is reported as commenting that she is very surprised that the NHS is being so unhelpful to Post Covid patients and diagnosing them with 'anxiety'. I will resist commenting. :whistle:
 

Art Vandelay

Senior Member
Messages
470
Location
Australia
She also joined a Long Covid group I am in ............and she was kicked out. However, the group leader told me that Prof C-G has Post Covid ME now herself. (I haven't had this confirmed yet.) She is reported as commenting that she is very surprised that the NHS is being so unhelpful to Post Covid patients and diagnosing them with 'anxiety'. I will resist commenting. :whistle:

Wow!! That's justice.