Dr David Tuller: Mom Speaks Out About NHS “Abuse” of Daughter; Norway Approves Lightning Process Study


Senior Member
I alerted David to Ella's story and am glad he has written about it. Sad to read Mum Jo's comment beneath though where she reports that The Times article attracted a number of unkind comments claiming Ella just needs a psychiatrist while Jo must have MbyP.

Trial By Error: Mom Speaks Out About NHS “Abuse” of Daughter; Norway Approves Lightning Process Study
20 July 2022 2 Comments

By David Tuller, DrPH

On Monday, The Times (UK) published a story about a 17-year-old girl with ME who has experienced hospital treatment that her family has referred to as “neglect and abuse.” The details are harrowing—but should not be unfamiliar to people aware of similar experiences reported by other teenagers with severe ME.

Parents and kids caught in the grips of practitioners at National Health Service facilities often decline to speak out about mistreatment, for fear of medical and legal repercussions. In this case, the mother, Joanne McKee, has taken the opposite step and gone public. She disseminated information on social media and spoke with the press.

Here’s the opening of the Times story:

“A mother has said an NHS hospital failed to offer her daughter adequate pain relief in a pattern of poor treatment that left the teenager suicidal.

Ella Copley, 17, from Tingley, West Yorkshire, has suffered from ME (myalgic encephalomyelitis), sometimes known as chronic fatigue syndrome, for seven years. She has been in Leeds General Infirmary since March, when she was taken there by ambulance with an infection later diagnosed as sepsis.

Her mother, Joanne McKee, 49, said the treatment Ella had received ‘feels like neglect and abuse.’ She has posted videos on social media of the teenager screaming in pain when medicine is given via a feeding tube into her small intestine. ‘I don’t think they believe that her pain is real at all,’ she said.