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https://www.virology.ws/2021/10/18/...-MVmgcwVWE14K19khImbMgMhA4F1qcZ40TTKvUIWsFuB0
Trial By Error: Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline
18 October 2021 by David Tuller Leave a Comment
By David Tuller, DrPH
I made this comment under David's post on Facebook:
Other reports that I received from a very reliable source were not this positive, unfortunately. GET harms were not accepted and my informant thinks that while the name will be dropped it will continue under the name Activity Management. Until the RCs and their members accept that GET actually does harm patients, we are not out of the woods.
My source strongly disagreed with the MEAction report where they claim that the harm inflicted on patients was acknowleged. I was reliably informed this did not happen.
People did not accept the harm caused by GET, although my contact tried to raise it, but had no support.
Trial By Error: Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline
18 October 2021 by David Tuller Leave a Comment
By David Tuller, DrPH
Two months ago, the UK’s National Institute for Health and Care Excellence (NICE) abruptly delayed publication of its new ME/CFS clinical guideline under fierce objections from the GET/CBT ideological brigades and their minions. Today (Monday, October 18th), the agency hosted a meeting to allow these powerful dissenters from some of the British medical associations grandly known as “royal colleges” to present their case, however stupid and unwarranted that case might be.
These esteemed parties apparently found it inconceivable and unacceptable that the main evidence for their purportedly “evidence-based” interventions was dismissed by NICE as being of “very low” or, in some cases, merely of “low” quality–an assessment reflected in the guideline’s rejection of the long-standing standard-of-care. Some GET/CBT brigadiers accused the guideline development committee of being over-influenced by irrational patients—even though only five patient representatives sat on the 21-person body. Some news organizations, even at this late date, accepted this sort of nonsense as legitimate scientific argumentation.
Professor Michael Sharpe, eminent PACE author and one-time Trial By Error commenter (!!!),
I made this comment under David's post on Facebook:
Other reports that I received from a very reliable source were not this positive, unfortunately. GET harms were not accepted and my informant thinks that while the name will be dropped it will continue under the name Activity Management. Until the RCs and their members accept that GET actually does harm patients, we are not out of the woods.
My source strongly disagreed with the MEAction report where they claim that the harm inflicted on patients was acknowleged. I was reliably informed this did not happen.
People did not accept the harm caused by GET, although my contact tried to raise it, but had no support.