MartinK
Senior Member
- Messages
- 364
Hi there,
someone already knows me here, someone not... and I am not happy with this report at all. But...lot of disappointment in recent months.
Fact is, summer is here and this year is hot temperature lot of worse for me - I feel the bed is burning with me!
My problems are the same from the beggining - bad CFS and lot of inflammation feelings.
5 Years was could handle it, last year after some flu I get worse and this year is critical...lot hours of day in bed, hard symptoms.
This all after lot of treatments. I know I had a Lyme and EBV when I was a child and lot of doctors still want me on Lyme protocols, but I did not respond of all treatments in past - no herxes, no nothing... tetracyclines, clarithromycines, rifampicinum, metronidazolum, some IV atbx...
And herbs - Cowden full support for 1 year, now Buhner for 0,5 year - core and Babs... no respond, no herxes... I can drink it in liters and nothing happens. Maximum dosages are no problem for me.
Essential oils, stevia, enzymes...all things for biofilms and persisters...
dr. KDM still want me on "persister protocol" but Im pretty scared of this, when another atbx and herbs for Lyme do nothing for me. And I dont want more chemistry in my weak body.
With this all Im still on big support from supplements - CoQ10, liposomal C, good B complex, E, D, K, Curcumin with piperin, lot of good oils...
Some SC Immunoglobulines from my doc for 2 years now...
10-pass ozone - nothing for me
Ketogenic diet for possible mast cell activation and inflammation - massive ketogenic flu and no more for me. Maybe few days I was little better, but no longer results. I dont know, if do ketogenic for next months or stop it... (now Im 3 months on it)
Maybe I try histamine diet... but its all shooting void of despair.
HBOT - firts year impressive results, this year nothing for me (absolutely not understand it!)
Anyone thinking something about it? One year most effective treatment (40 sessions) and now (another 40 sessions) nothing... all in hard chamber.
Sauna, epsom salt bath - this detox methods makes my inflammation harder, another detox methods makes nothing. Somethimes PEM from this...and last PEM was from massage.
Mold things - dont know, I live in good new house for 12 years now...no molds here
Possible gut problems - many diets trying, no allergens...this make nothing too.
I was on KDM normix/mesalazine/biokult gut protocol without results. But my digestion feels perfectly fine...no bloating or something...better than ever. Dont understand, why Kyna and PGE2 are increased a lot... (LPS related)
Heavy metals - lot of amalgams from my mouth are out! Now only 3 amalgams inside, I was on big surgery with wisdom teeths, infection under one is treated - all without effects.
Best heavy metals testing is? Maybe here is some way...
Maybe is there some more in this crazy 6,5 year! But its a fact, I'm much worse over it all. Crazy thing is, on paper - on results (lot of investigation) is lot of results better and better! Im crazy everytime when I see results and feel my body, my CFS and inflammation... all is bad like 500 meters walk for a day and 2 days in bed after this "massive performance".
Sometimes I thought it was psychic (from despair), but fact is, I am very positive most of the time, carrying over a lot of things. Its not like - thinking about my state and symptoms comming, no - symptoms comming and I'll realize it.
This is, why Im little bit uncertain with all that neuro-programming programs... (DNRS and more) :-/
What do I think about it? Something inside me makes a massive inflammation and this makes all that problems - like chronic-active immune system fighting with something that doesn't exist for some time.
Fact is, I dont now what to do next? :-/ stop buhner and all around, save some money and try some completely different? Im very unsure with the infections in me, but still not find right way...
I think if I get rid of inflammation, I'll be much healthier, but I don't know how to do it anymore...
Some ayurveda stuff?
Parasites?
Get out last amalgams and start chelation?
Try immune supressors?
Hyperthermia? (because fever makes me better - 2 times verified after flu
Analgetics? (this is most crazy idea...no solving problem, but when I woke up after wisdom teeths surgery narcosis last year, I felt 100% healthy for 1 day! I attribute it to analgesics)
Bee venom therapy?
Or?
Everything is welcome! every advice, every tip...this can't work anymore, something must happen ...
Most crazy thing is, blood test results are still better, but Im still worse. and I don't know how I can endure that inflammation in the summer :-/
Thanks a lot, Martin
someone already knows me here, someone not... and I am not happy with this report at all. But...lot of disappointment in recent months.
Fact is, summer is here and this year is hot temperature lot of worse for me - I feel the bed is burning with me!
My problems are the same from the beggining - bad CFS and lot of inflammation feelings.
5 Years was could handle it, last year after some flu I get worse and this year is critical...lot hours of day in bed, hard symptoms.
This all after lot of treatments. I know I had a Lyme and EBV when I was a child and lot of doctors still want me on Lyme protocols, but I did not respond of all treatments in past - no herxes, no nothing... tetracyclines, clarithromycines, rifampicinum, metronidazolum, some IV atbx...
And herbs - Cowden full support for 1 year, now Buhner for 0,5 year - core and Babs... no respond, no herxes... I can drink it in liters and nothing happens. Maximum dosages are no problem for me.
Essential oils, stevia, enzymes...all things for biofilms and persisters...
dr. KDM still want me on "persister protocol" but Im pretty scared of this, when another atbx and herbs for Lyme do nothing for me. And I dont want more chemistry in my weak body.
With this all Im still on big support from supplements - CoQ10, liposomal C, good B complex, E, D, K, Curcumin with piperin, lot of good oils...
Some SC Immunoglobulines from my doc for 2 years now...
10-pass ozone - nothing for me
Ketogenic diet for possible mast cell activation and inflammation - massive ketogenic flu and no more for me. Maybe few days I was little better, but no longer results. I dont know, if do ketogenic for next months or stop it... (now Im 3 months on it)
Maybe I try histamine diet... but its all shooting void of despair.
HBOT - firts year impressive results, this year nothing for me (absolutely not understand it!)
Anyone thinking something about it? One year most effective treatment (40 sessions) and now (another 40 sessions) nothing... all in hard chamber.
Sauna, epsom salt bath - this detox methods makes my inflammation harder, another detox methods makes nothing. Somethimes PEM from this...and last PEM was from massage.
Mold things - dont know, I live in good new house for 12 years now...no molds here
Possible gut problems - many diets trying, no allergens...this make nothing too.
I was on KDM normix/mesalazine/biokult gut protocol without results. But my digestion feels perfectly fine...no bloating or something...better than ever. Dont understand, why Kyna and PGE2 are increased a lot... (LPS related)
Heavy metals - lot of amalgams from my mouth are out! Now only 3 amalgams inside, I was on big surgery with wisdom teeths, infection under one is treated - all without effects.
Best heavy metals testing is? Maybe here is some way...
Maybe is there some more in this crazy 6,5 year! But its a fact, I'm much worse over it all. Crazy thing is, on paper - on results (lot of investigation) is lot of results better and better! Im crazy everytime when I see results and feel my body, my CFS and inflammation... all is bad like 500 meters walk for a day and 2 days in bed after this "massive performance".
Sometimes I thought it was psychic (from despair), but fact is, I am very positive most of the time, carrying over a lot of things. Its not like - thinking about my state and symptoms comming, no - symptoms comming and I'll realize it.
This is, why Im little bit uncertain with all that neuro-programming programs... (DNRS and more) :-/
What do I think about it? Something inside me makes a massive inflammation and this makes all that problems - like chronic-active immune system fighting with something that doesn't exist for some time.
Fact is, I dont now what to do next? :-/ stop buhner and all around, save some money and try some completely different? Im very unsure with the infections in me, but still not find right way...
I think if I get rid of inflammation, I'll be much healthier, but I don't know how to do it anymore...
Some ayurveda stuff?
Parasites?
Get out last amalgams and start chelation?
Try immune supressors?
Hyperthermia? (because fever makes me better - 2 times verified after flu
Analgetics? (this is most crazy idea...no solving problem, but when I woke up after wisdom teeths surgery narcosis last year, I felt 100% healthy for 1 day! I attribute it to analgesics)
Bee venom therapy?
Or?
Everything is welcome! every advice, every tip...this can't work anymore, something must happen ...
Most crazy thing is, blood test results are still better, but Im still worse. and I don't know how I can endure that inflammation in the summer :-/
Thanks a lot, Martin