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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I think trypotophan is a problem for me because my ME is converting too much of it to the neurotoxic kynurenines, such as quinolinic acid. Your test results show an excess of KYNA, which is the good kynurenine (antiinflammatory I think).
- could one drug work before and now make me sick? - Nalcrom
- can pollen cause hard PEM?
Getting rid off amalgam is a good idea - the question is still how to get ridd off it.Heavy metals - lot of amalgams from my mouth are out! Now only 3 amalgams inside, I was on big surgery with wisdom teeths, infection under one is treated - all without effects.
If someone has MCAS = allergies can "switch" and MCAS sufferers can (in the worst case) get allergic reactions off all kind to nearly everything, even against water, humans (their "smell", no joke), heat, cold, exercising.Im allergic to pollen for many years, but always without PEM. Is it possible that cromolyn can make it worse?
I'm still looking for answers...
- can peptides worsen some patients? what types of patients?
- could one drug work before and now make me sick? - Nalcrom
- can pollen cause hard PEM?
I cant see much sense in ketogenic diet, but this is just my personal opinion from a view as former weight lifter. (such folks usually can not see any sense in any diet)Ketogenic diet for possible mast cell activation and inflammation - massive ketogenic flu and no more for me.
https://www.imd-berlin.de/en/laboratory.htmlWhat laboratories do you use?
I privatly visited in past a Dip. Ing. laboratory medicine immunologistan for special Immune Systemediagnostik.Did you consult MCAS with someone good, educated??
https://forums.phoenixrising.me/thr...vailability-and-different-formulations.78979/And...anyone for MCAS tried NeuroProtek or Luteolin in other form?
There is mastattack.org & mastzellaktivierung.info with some good basic informations, but those websites dont go deeper into some MCAS details/treatment options. Most information I have is handwritten material from the Immunologistan, there is also some German language CME-certificated MCAS material availible.Or...best sites to follow?
For which drugs, for example, have you observed these cases with a disappearing effect?
I unfortunatly dont know personaly any other ppl. from DE with MCAS that have undergo the full MCAS diagnostic tools. What I still know there were some clips posted on YT where MCAS sufferersCentre for Rare Diseases...Birmingham? This looks very good! They do remote consultations for bedridden patients? Do you know any other patients from here with experience from Rare Diseases Centre?
Prednisone - any side effects?
You did how big dose?
Please, what is T2? Tylenol?
Great inspiration... cumin effect for you is amazing. You know more people from forum, who benefit from this like you?
By the way, what level are you at now? ;-)
Chromolyn pills work primary local in the gut whereas Ketotifen is systemic and able to cross brain/blood barrier. Quercetin needs a carrier to enhance bioavailability - I found NeuroProtek (was it this Que with olive oil, or so?) overprized if there is no data if the combination really works.I just started Ketotifen and Aerius, I wonder if there will be any noticeable difference from Cromolyn.Maybe I will try also NeuroProtek and TUDCA, but this time I'll start one by one, careful
I read some really crazy stories with Prednisone. What do you think about the effect of action?
@Wishful it is in some context with Kynurenic Acid? I have really high this acid from blood tests...and you?
Well, a good question one MCAS criteria that under H1/H2 some prompt symptom relief happens,I'm starting Ketotifen today! I hope it helps! any experience from someone, how fast should it start working?