I have always been a night owl, even before my SEID/CFS. I have read so much about how an early bed time (like by 10 pm) is good for fatigue and overall health. Has anyone determined how much difference this makes for their SEID?
It makes all the difference in the world for me. A disturbed circadian rhythm that is out of sync with the natural sun cycle will cause me to feel CFS-like symptoms almost immadately. Really throws the whole biological system off.
yeah it helps. nature probably intended that we sleep sun set to sun rise which is quite different than what I do atm. another thing that helps a lot is sleeping on the floor instead of a mattress. i have been doing it a few nights and will keep doing it. i notice it is more comfortable and i nose breathe instead of mouth breathe. nose breathing increases brain and blood oxygenation 15% compared to mouth breathing.
I feel this illness has changed my biological clock. It doesn't matter how early or late I go to bed, it stays skewed, though sometimes less skewed than others.
Of course I need to lie down more than the average person generally, unconnected to bedtime.
I find it better to go to bed closer to when I am ready to sleep (3-5am) because if I go too early, I lie there feeling depressed and thinking of the things I should be doing and haven't done because I was too knackered today.
I do better when I sleep at night and have two short naps in the day, but like many of us I spend a lot of time in the bed.
My schedule tends to get reversed. I think what helps for now is that I am still getting up by 5:30 am to get a child off to school. That forced wake up time I think helps me. No matter how hard the night I still have to get up.
Not me. I’ve tried to normalize my sleeping cycle several times over the years, but run into problems every time. Now, having caved in and let my body decide the sleeping pattern I feel «better». No shame, no guilt, no «should have». Just accepting my natural cycle gives me longer uninterupted sleep, deeper sleep, and better «mornings» when I finally get up.
I usually go to bed at 5 am. - 6 am. and wake up at 2.pm-3.pm. Getting out of bed at approx 4.pm-5.pm.