Does Abilify help ?
- Thread starter Quilp
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Already an existing 70 page thread on Abilify—better to use existing threads than to keep making new threads on same topic.
https://forums.phoenixrising.me/threads/abilify-stanford-clinic-patients.62807/
https://forums.phoenixrising.me/threads/abilify-stanford-clinic-patients.62807/
YippeeKi YOW !!
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While I generally agree with this, I think that it's a lot to ask of someone going thru fairly extreme ME symptoms to read thru 70 pages (!!!!!) with various opinions/input/experiences with Abilify.
Generally, seeing 'Abilify' in the title of a thread will hopefully call in members with direct experience or input @Quilp , so just wait and see what comes up here ....
Jessie 107
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I am in the UK, my doctor refused to prescribe Abilify. So I ordered it from a online pharmacy.
GlassCannonLife
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You still finding it helpful? I think you were one of the few that kept benefits over a long time right?
Jessie 107
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Yes it's still working for me, I am severe. I have been on it for about 18months now.
Thank you all, and yes going through 70 replies/pages is a little too much right now. I am aware of the FB page too.
I am so upset for those for whom it worked and then stopped working, Jessie, might I ask how it has helped you and what dosage you are on ? The same to anyone else.
Also to those for whom it worked, has anyone taken a break of say a year and then started again ? Could it be that it worked a second time.
I would really like OMF to say more ( apologies if i've missed it ) in respect of how many people and to what extent and for how long this is working.
Is it expensive ?
Finally, weight gain seems to be a theme, but has anyone suffered from any serious side effects ?
Many thanks, Mark
I am so upset for those for whom it worked and then stopped working, Jessie, might I ask how it has helped you and what dosage you are on ? The same to anyone else.
Also to those for whom it worked, has anyone taken a break of say a year and then started again ? Could it be that it worked a second time.
I would really like OMF to say more ( apologies if i've missed it ) in respect of how many people and to what extent and for how long this is working.
Is it expensive ?
Finally, weight gain seems to be a theme, but has anyone suffered from any serious side effects ?
Many thanks, Mark
Jessie 107
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Abilify has helped me in many ways.
I have been bedbound for almost 4years now, since starting Abilify I no longer have the ill/ malaise or flu like symptoms.
I can have a bath using a bath lift,
Rest downstairs every day using a stairlift,
Lay outside,
Talk more,
Use my phone more,
Feed myself,
Tolerate more light,
Less crashes,
All these things were not possible before.
I take 2mg, I've no idea why it is still working I dread the day when it doesn't because I don't want to go back to how I was before.
Jessie 107
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I forgot to mention that I have also been able to stand up for 10 seconds for the first time with out crashing 
GlassCannonLife
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You slowly went up to the 2 mg right?
Jessie 107
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Yes, increased by 0.25mg per week.
@Jessie 107 did the abilify effects seem to kick in pretty immediately? I guess might be hard to say since you titrated... I'm on 15mg already and am considering trying a quarter pill for a few days. I don't want to stay off my usual dose for too long though so I wonder if there's value to be had in the experiment.
Jessie 107
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To be honest, I can't remember, I will say it was a few weeks.
That seems to be all too common for ME treatments of any kind. I've had quite a few things that worked well for a few doses, and then stopped working. My experience is that once they stop working, they never work again, even when I tried years later.
There's no guarantee that it won't work again, so it may be worth trying again occasionally. It's also worth stopping a treatment occasionally to make sure that it's still actually making a difference, or checking to see whether the dosage should be changed.
Judee
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However, if a person knows something is working stick with it. I stopped Mutaflor when it was working because cycling it was recommended on one site. Then
it never worked again. IF I ever have it work again, I'm going to keep taking it until it stops working.I stopped Mutaflor when it was working because cycling it was recommended on one site. Then
There's no guarantee that it would have kept working at that point even if you hadn't stopped taking it. Of the many treatments I tried that never worked again, I think only one occurred after stopping it, but that was prednisone, which my doctor wouldn't prescribe long-term. I think if he had prescribes another bottle, it's very likely that it already wouldn't have worked.
I only had four treatments that continued to work until they were no longer needed.