Does Abilify help ?

Quilp

Senior Member
Messages
217
Likes
553
Those of you in the UK, were you able to ask your GP to be placed on Abilify or did you meet a road block ? I really need to try something. At this point I feel like I have little to lose.
 
Messages
15,188
Likes
35,065
Location
Second star to the right ...
Already an existing 70 page thread on Abilify—better to use existing threads than to keep making new threads on same topic.
While I generally agree with this, I think that it's a lot to ask of someone going thru fairly extreme ME symptoms to read thru 70 pages (!!!!!) with various opinions/input/experiences with Abilify.

Generally, seeing 'Abilify' in the title of a thread will hopefully call in members with direct experience or input @Quilp , so just wait and see what comes up here ....
 

Quilp

Senior Member
Messages
217
Likes
553
Thank you all, and yes going through 70 replies/pages is a little too much right now. I am aware of the FB page too.
I am so upset for those for whom it worked and then stopped working, Jessie, might I ask how it has helped you and what dosage you are on ? The same to anyone else.

Also to those for whom it worked, has anyone taken a break of say a year and then started again ? Could it be that it worked a second time.

I would really like OMF to say more ( apologies if i've missed it ) in respect of how many people and to what extent and for how long this is working.

Is it expensive ?

Finally, weight gain seems to be a theme, but has anyone suffered from any serious side effects ?

Many thanks, Mark
 

Jessie 107

Senior Member
Messages
288
Likes
1,056
Location
Brighton
Thank you all, and yes going through 70 replies/pages is a little too much right now. I am aware of the FB page too.
I am so upset for those for whom it worked and then stopped working, Jessie, might I ask how it has helped you and what dosage you are on ? The same to anyone else.

Also to those for whom it worked, has anyone taken a break of say a year and then started again ? Could it be that it worked a second time.

I would really like OMF to say more ( apologies if i've missed it ) in respect of how many people and to what extent and for how long this is working.

Is it expensive ?

Finally, weight gain seems to be a theme, but has anyone suffered from any serious side effects ?

Many thanks, Mark
Abilify has helped me in many ways.
I have been bedbound for almost 4years now, since starting Abilify I no longer have the ill/ malaise or flu like symptoms.
I can have a bath using a bath lift,
Rest downstairs every day using a stairlift,
Lay outside,
Talk more,
Use my phone more,
Feed myself,
Tolerate more light,
Less crashes,
All these things were not possible before.
I take 2mg, I've no idea why it is still working I dread the day when it doesn't because I don't want to go back to how I was before.
 
Messages
819
Likes
1,441
Abilify has helped me in many ways.
I have been bedbound for almost 4years now, since starting Abilify I no longer have the ill/ malaise or flu like symptoms.
I can have a bath using a bath lift,
Rest downstairs every day using a stairlift,
Lay outside,
Talk more,
Use my phone more,
Feed myself,
Tolerate more light,
Less crashes,
All these things were not possible before.
I take 2mg, I've no idea why it is still working I dread the day when it doesn't because I don't want to go back to how I was before.
You slowly went up to the 2 mg right?
 
Messages
52
Likes
107
Location
UK
@Jessie 107 did the abilify effects seem to kick in pretty immediately? I guess might be hard to say since you titrated... I'm on 15mg already and am considering trying a quarter pill for a few days. I don't want to stay off my usual dose for too long though so I wonder if there's value to be had in the experiment.
 

Jessie 107

Senior Member
Messages
288
Likes
1,056
Location
Brighton
@Jessie 107 did the abilify effects seem to kick in pretty immediately? I guess might be hard to say since you titrated... I'm on 15mg already and am considering trying a quarter pill for a few days. I don't want to stay off my usual dose for too long though so I wonder if there's value to be had in the experiment.
To be honest, I can't remember, I will say it was a few weeks.
 

Wishful

Senior Member
Messages
4,766
Likes
8,664
Location
Alberta
I am so upset for those for whom it worked and then stopped working,
That seems to be all too common for ME treatments of any kind. I've had quite a few things that worked well for a few doses, and then stopped working. My experience is that once they stop working, they never work again, even when I tried years later. :( There's no guarantee that it won't work again, so it may be worth trying again occasionally. It's also worth stopping a treatment occasionally to make sure that it's still actually making a difference, or checking to see whether the dosage should be changed.
 

Judee

Senior Member
Messages
3,168
Likes
8,825
Location
Great Lakes
It's also worth stopping a treatment occasionally to make sure that it's still actually making a difference,
However, if a person knows something is working stick with it. I stopped Mutaflor when it was working because cycling it was recommended on one site. Then :bang-head: it never worked again. IF I ever have it work again, I'm going to keep taking it until it stops working.
 

Wishful

Senior Member
Messages
4,766
Likes
8,664
Location
Alberta
I stopped Mutaflor when it was working because cycling it was recommended on one site. Then :bang-head: it never worked again.
There's no guarantee that it would have kept working at that point even if you hadn't stopped taking it. Of the many treatments I tried that never worked again, I think only one occurred after stopping it, but that was prednisone, which my doctor wouldn't prescribe long-term. I think if he had prescribes another bottle, it's very likely that it already wouldn't have worked.

I only had four treatments that continued to work until they were no longer needed.