Hello,
In another posting, I mentioned that I am advocating for my daughter who has CFS, FM, POTs and IBS. She was tested for 2 genetic variations of MTHFR and was found to be compound heterozygous for both A1298C and C677T.
I am wondering if anyone knows of any docs that actually have experience in treating someone (e.g. the proper dosing of supplements) with such genetic polymorphisms. I am in the Philadelphia, PA area but could consider New Jersey, New York, Maryland and Washington, DC - i.e. the general mid-Atlantic area.
I am aware Dr. Ben Lynch has a list of those docs who have been attended his training program, but I don't know any of those folks. Ideally, I'd prefer a medical doc who takes insurance, but we've already been to an ND (who our insurance provider doesn't recognize), so I assume this will be the case again.
I have communicated with a few genetics labs at hospitals, but for the most part, they indicated that they do more "traditional" genetic testing associated with medical disorders, and they only test MTHFR mutations when high levels of homocysteine are involved.
I am also aware of the late, Rich Van Konynenburg's Simplified Methylation Protocol, but I would certainly want to work in conjunction with a physician, per his own recommendations on the subject.
So, any advice on actually finding appropriate resources would be extremely helpful.
Thank you very much in advance for your recommendations and advice.
Scotty81
In another posting, I mentioned that I am advocating for my daughter who has CFS, FM, POTs and IBS. She was tested for 2 genetic variations of MTHFR and was found to be compound heterozygous for both A1298C and C677T.
I am wondering if anyone knows of any docs that actually have experience in treating someone (e.g. the proper dosing of supplements) with such genetic polymorphisms. I am in the Philadelphia, PA area but could consider New Jersey, New York, Maryland and Washington, DC - i.e. the general mid-Atlantic area.
I am aware Dr. Ben Lynch has a list of those docs who have been attended his training program, but I don't know any of those folks. Ideally, I'd prefer a medical doc who takes insurance, but we've already been to an ND (who our insurance provider doesn't recognize), so I assume this will be the case again.
I have communicated with a few genetics labs at hospitals, but for the most part, they indicated that they do more "traditional" genetic testing associated with medical disorders, and they only test MTHFR mutations when high levels of homocysteine are involved.
I am also aware of the late, Rich Van Konynenburg's Simplified Methylation Protocol, but I would certainly want to work in conjunction with a physician, per his own recommendations on the subject.
So, any advice on actually finding appropriate resources would be extremely helpful.
Thank you very much in advance for your recommendations and advice.
Scotty81
