I don't deserve any treatment (not even for sleep, pain, POTS) and that no doctor seems to care if I have to retire and spend life in bed with thirtysomething.
Spot on! That’s exactly the attitude of every “state assigned” doctor and specialist in Norway too, It’s unbelievable, really. Why shouldn’t the multiple affected systems be treated..low immunity, dysbiosis, malabsorption, nutritional deficiences, tryptophan depletion, pain, circulation (OI, POTS, angina like pains), brain fog, memory issues, carb intolerance (diet interventions), metabolism & energy creation.
Every specialist you visit, they look at you, they rapidly seem to conclude that this person does not look sick at all (no wonder, living so annoyingly healthy for years now), and from that point they seem unable to LISTEN, the symptoms you present are not even written down, they look at you with an empty gaze (prob thinking u r a hypochondriac), and from that point you already know that no clinical analysis willl be done, no diagnosis will be given, no treatment suggested. What does people do at this point..any suggestions?
We are forced to become our own doctors. To seek private doctors. To experiment with supplements, diets, treatments.
Established health care has left us alone. They have almost nothing to offer. Incredible, after so many years.
Where is the research, the knowledge aquisition? Very convenient for them to ignore our situation, render it as psychology, post viral fatigue..or laziness. In the mean time we “disappear”, stay at home, in our beds, give up,
How can we make them listen? Make the medical world take this disease seriously?
I am playing with the idea of a mass lawsuit these days, what if the thousands with ME here in Norway took the health authorities to court, for not providing the health serviced that we by law are entitled to recieve.. That we demand research, experimental treatment, knowledgable MDs..much like in the field of cancer, MS, RA..or any other disease that has been ”accepted” as real.