The letter is attracting positive attention from some high profile and senior journalists, and others with huge followings on Twitter:
https://twitter.com/carlzimmer/status/620972261244280832
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https://twitter.com/carlzimmer/status/620972261244280832
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A writer felled by myalgic encephalomyelitis (aka chronic fatigue) asks @NIHDirector to stop neglecting the disease
My point is as well as campaigning on big targets we should also offer simple steps that can be taken. That way we may get somewhere.
Hi...Brian here. Thank you for all the kind words and for sharing the letter. I've been told Dr. Collins read it and will be responding...we'll see.
Sure, I'd love a billion dollars a year set aside to help cure us all. But that's not going to happen tomorrow. It will take time to build up support within NIH for a robust ME/CFS program. Doubling or quadrupling funding would be huge
I think it's even more important that prominent scientists like Ron Davis are lobbying Dr. Collins. This feels like the time when NIH may just move its concrete feet. Here's hoping....