Throws the MEA into an ever increasingly dodgy light (at least from where I'm standing). The circumstances are not conducive to a delayed reply. This delay has gone on way too long. It's a binary choice: either they support Holgate's insistence that the CMRC fully support Crawley (which we know isn't true since MERUK have left the CMRC) or they think it's perfectly ok for EC to behave in the way she did at the renal conference. It's a 'yes' or a 'no' in that respect. It shouldn't take this long to work that out!
It may seem quite the simple response rationally but I expect that in other ways it is more difficult.
I agree about what outcome for a response I think is the best -- that is 'leaving the tent'.
I have all day to hang around here with nothing better to do but eagerly await CS answer to our questions. But I don't feel there is anything hanging in the balance or game changing about needing the response now. If the response is not to our liking then it delays the inevitable further debate on the subject but that doesn't change our situation.
I do think an answer is necessary and dodging the issue entirely isn't OK but if there was a great deal of commitment to seeing something through that CS thought was the right choice to move things forward it would take me time to wrap my head around letting it go.
Maybe we can turn our thoughts to what and how Esther Crawley might try to spread her lies about the nature of ME as just a continuation of a fatigue syndrome and her lies about patients advocating against her.
No doubt having been caught out at the Nephrology conference she'll insist on no social media while seeking other venues for her crusade. So how to continue to call her out?
I presume the MEGA team are still working on presenting a new proposal for grant money. I have been expecting to hear updates from the PAG since they are there as advisors on behalf on patients. So where the F are they? I they don't want to be seen as puppets then perhaps they can let us know what's going on. I know there are probably things they can't say but that shouldn't stop them giving an update. Or maybe they do and it's on the AfME site.
I think that continuing to try and have a dialogue with others on the MEGA team such as Chris Ponting and George Davey Smith as to our concern that their biological findings will simple be used to harm PwME and why could be useful too.