The question with polls is whether voters have all the info they need to make an informed decision.
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I wonder how it is decided who should be on and continue serving on the board of these things and more importantly the process for removing people? It smells a bit like gravy...making me suspicious about how this organisation is funded and who they are accountable to? It doesn't seem to be revolving around patient care.
From my point of view I don't think the MEA should leave the CMRC until they have made every effort to remove dysfunctional members who have proven time and time again to be a liability in terms of patient interests.
This is fairly fundamental...patient care and how the illness is portrayed to others within the medical field.
The other thought that occurred was that all the good work of the MEA will be undermined if there is no consistency of message across the members of the CMRC? If they can't all agree a common message between themselves...then what is the group for? Just seems to be a dysfunctional group that can't even agree on simple things like communication to colleagues. Where does the accountability lie for this?
I think this says to me as a relatively new observer that the whole organisation needs a new broom?
I don't really understand the mechanics of the CMRC so perhaps these questions are naive?
I think if every effort is made with still no success then MEA should leave and lobby for change on the outside.
I think doing nothing is not an option...otherwise the misinformation about patients will continue at the next orthopedic care conference or whatever.
rather than tell you what I think should happen, perhaps you can tell us what action the MEA proposes to take to stop this misinformation about patients being propagated? @charles shepherd
From my point of view I don't think the MEA should leave the CMRC until they have made every effort to remove dysfunctional members who have proven time and time again to be a liability in terms of patient interests.
This is fairly fundamental...patient care and how the illness is portrayed to others within the medical field.
The other thought that occurred was that all the good work of the MEA will be undermined if there is no consistency of message across the members of the CMRC? If they can't all agree a common message between themselves...then what is the group for? Just seems to be a dysfunctional group that can't even agree on simple things like communication to colleagues. Where does the accountability lie for this?
I think this says to me as a relatively new observer that the whole organisation needs a new broom?
I don't really understand the mechanics of the CMRC so perhaps these questions are naive?
I think if every effort is made with still no success then MEA should leave and lobby for change on the outside.
I think doing nothing is not an option...otherwise the misinformation about patients will continue at the next orthopedic care conference or whatever.
rather than tell you what I think should happen, perhaps you can tell us what action the MEA proposes to take to stop this misinformation about patients being propagated? @charles shepherd
And me.
I worry that if new researchers and drug companies are exposed to ME via Crawley they won't get an accurate picture of the illness or what would make good research projects.
I worry that if new researchers and drug companies are exposed to ME via Crawley they won't get an accurate picture of the illness or what would make good research projects.