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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Woo hoo! Thank you, everybody who contributed in every way!102% now raised
Thank you so much Erica Verillo!
Just read about this wonderful talented lady. Sincerest thanks.102% now raised
Thank you so much Erica Verillo!
Or a tent with a certain number of pegs. Pull one peg out, then another, until the tent is flapping in the breeze and eventually blows off the cliff edge.Almost worth thinking of it as a table with however many legs. Obviously PACE itself is one and Cochrane another. Any others. Tackle one at a time.
Exactly. The principle is that each peg pulled out has more effect than the previous one. Comes a critical point where the remaining pegs have less holding power than the wind has pulling power ... And out of the ground the whole sorry mess comes. Yes, I prefer the tent. Each peg removed is a bigger and bigger proportion of those left, and I have no idea if the math of a flapping tent but I imagine each additional freedom to flap must disproportionately increase the stresses on the remaining pegs. Suspect it maps quite well on the problem in question.Or a tent with a certain number of pegs. Pull one peg out, then another, until the tent is flapping in the breeze and eventually blows off the cliff edge.
The Center will transfer 100% of the net funds -- after credit card fees and Crowdrise fees -- to the School of Public Health at UC Berkeley, which will create a position focused on investigating the PACE trial and others issues related to ME/CFS.
I think the CMRC realise they need to keep the MEA in the tent (the pissing out/in thing).perhaps they've been told not to support him in this or they won't be allowed back in the CMRC tent...
Feels even more worrying somehow.I think the CMRC realise they need to keep the MEA in the tent (the pissing out/in thing).
And all this achieved without the support of the two main patient charities in the UK - neither AfME (unsurprisingly) or MEA (disappointingly) chose to post this on Facebook. The MEA in particular is puzzling, they have shared David Tuller links before, perhaps they've been told not to support him in this or they won't be allowed back in the CMRC tent...
This is the ethical quagmire MERUK highlighted when they decided to leave. Which is why I immediately made a donation to them.
Just in case this is missed: